Links to posts in reverse date order back to June 18, 2007 [approximately 980 posts].
For monthly archives see Archives widget in right hand column.
- ME agenda: update on status of this site
- Next Meeting of the ICD-9-CM Coordination and Maintenance Committee
- New Twitter address and new domain for Dx Revision Watch
- Recent posts on Dx Revision Watch: ICD-11 Beta draft updates
- US advocate’s Call to action – DSM-5 comments needed by June 15, 2012
- Update One from Dx Revision Watch January, 2012
- British Psychological Society calls on members to sign petition for independent review of DSM-5 draft proposals
- Federal Notice of next CFSAC meeting, Tuesday 8 and Wednesday 9 November (US)
- Discussion of proposals for coding of CFS for ICD-10-CM at May 10-11, 2011 CFSAC meeting
- Position statement (ICD-10-CM proposed coding issue)
- Just three days left before second DSM-5 stakeholder review closes
- Recent posts on Dx Revision Watch site around DSM-5 second public review
- Second DSM-5 public comment period closes 15 June: Final Call for Action
- Chronic Fatigue Syndrome Advisory Committee (CFSAC) Presentations 10-11 May 2011
- Heads up: Next meeting of Chronic Fatigue Syndrome Advisory Committee (CFSAC) (US)
- Posting of revised draft proposals for DSM-5 criteria postponed until August
- Ian Swales, MP amends his understanding of government policy on CFS and ME
- “CFS orphaned in the “R” codes in US ICD-10-CM” and “Erasing the interface between psychiatry and medicine” (DSM-5)
- New category proposal for DSM-5: “Simple Somatic Symptom Disorder”
- Letter issued by NRES following scrutiny of complaints in relation to SMILE Lighting Process pilot study
- Update on NRES scrutiny of complaints received in relation to ethics approval of SMILE LP pilot study
- BMJ takes two months to publish letter on Lightning Process and SMILE pilot study in children
- Winter solstice
- Summary MEA Board of Trustees meeting 15-16 November 2010: Lightning Process
- Minutes Forward-ME meeting, 26 October 2010: Lightning Process trial involving children
- Church Times: Dr Esther Crawley responds to Prof Robin Gill (SMILE Lightning Process pilot study)
- Bath/Bristol Lightning Process pilot study: Minutes of meeting of External Advisory Group 02.11.10
- Progress on complaints to NRES (ethics approval of SMILE Lightning Process pilot study in children)
- Transcript: BBC Radio Berkshire, Anne Diamond, ME/CFS: Shepherd, Findley, Parker
- Dr Charles Shepherd, Prof Leslie Findley and Phil Parker (Lightning Process) on Radio Berkshire
- Response from Joan Kirkbride, NRES (SMILE pilot study in children)
- Lightning Process pilot study in children (SMILE): request for the funding application documents
- AYME welcomes ethical approval of Bath/Bristol Lightning Process pilot study in children (SMILE)
- Countess of Mar Written Question on ethical approval of Lightning Process study: Response from Earl Howe
- Which patient organisations were involved in the development of the SMILE pilot study?
- Response from NRES following complaints about Lightning Process trial
- Changes to ME agenda WordPress site
- Countess of Mar: Questions for Written Answer: Lightning Process pilot study ethical approval
- ME in Parliament: Written Questions: ME and UK blood ban; Retrovirals and ME research
- Dr Esther Crawley: Transcript of Presentation: The Future of Research in CFS/ME
- Children should not be used as guinea pigs: Prof Robin Gill, Church Times (LP pilot study)
- ME and CFS in Parliament: Term dates, APPG on ME and Lightning Process pilot study, Written Question, new EDM
- House of Lords short debate: Neurological health conditions 11 October 2010
- House of Commons: Written answers and statements: Phil Parker Lightning Process
- RiME: Commentary on APPG on ME Inquiry into NHS Service Provision for ME/CFS, March 2010
- Summaries: MEA Board of Trustees meetings 6th and 7th of September 2010 and AGM
- Chutzpah – he’s got it in spades! (Lightning Process and scientific research)
- SMILE – Specialist Medical Intervention and Lightning Evaluation documents
- “Unethical” Lightning Process pilot study in children receives ethics approval
- An open AGM and some questions for Action for M.E. (Lightning Process)
- New evidence that ME, CFS in children could be caused by a virus
- MEA statements: Review of NICE guideline CG53 and PACE Trial results
- Landmark agreement extends ASA’s digital remit (Lightning Process pilot study in children)
- Lightning Process: further statement from ME Association and Young ME Sufferers Trust
- Text version: Review of Invest in ME proposal for a ‘Centre of Excellence for ME’ in Norfolk
- Review of Invest in ME proposal for a ‘Centre of Excellence for ME’ in Norfolk
- Accessing a copy of MRC National Archives material via PDF
- Update on ethics approval: Dr Esther Crawley Bath/Bristol Lightning Process pilot study for children 8 to 18
- New blood donation policy for ME/CFS patients from 1 November 2010
- ME Association Summary and Statement on Lo et al paper
- Media coverage round up 2: UK media coverage: Alter et al XMRV PNAS paper
- Media coverage 1: Presence of Murine Leukemia Virus Related Gene Sequences Found in CFS Patients
- Questions for Action for M.E. (Lightning Process pilot study in children)
- Study: Presence of Murine Leukemia Virus Related Gene Sequences Found in CFS Patients
- Action for M.E. and Lightning Process research on children – An opinion: Peter Kemp
- Action for M.E. issues second position statement on Lightning Process pilot in children 8 to 18
- 25% ME Group position statement on Lightning Process pilot study in children 8 to 18
- Dr Esther Crawley discusses XMRV and WPI, March 2010
- Response to request for Internal Review FOI: Lightning Process pilot study in children
- Lightning Process pilot: Update and response from Research Governance Manager, DoH
- House of Commons Debate: Health: Lightning Process
- FOI requests: South West SHA and National Research Ethics Service
- Teen ‘trained’ to overcome illness: This is Cornwall
- Child Experimentation on the NHS; a new article on MESHARE
- Scientific trial involving children and the Lightning Process is unethical, says joint statement issued by two national ME charities
- BRAME Statement about the Lightning Process
- All Party Parliamentary Group on ME reforms
- Invest in ME Decline BACME Invitation
- Request for internal review: FOI responses Lightning Process pilot using ME and CFS children
- Lightning Process pilot for ME and CFS children: Funding letters
- A question of ethics; Juvenile Treatment – Testing and LP – CBT/GET ethics
- Unethical Bristol/Bath Lightning Process ME/CFS children pilot study
- Is it ethical to undertake a pilot looking at feasibility of recruiting children 8 to 18 with CFS and ME into an RCT comparing Lightning Process and specialist medical care when no rigorous RCTs into the application of LP in adults have been undertaken?
- ME Association: Advertising Standards Authority upholds a complaint against a Lightning Process practitioner
- Advertising Standards Authority upholds complaint against Withinspiration (Lightning Process)
- Benefits reform: Media coverage BBC and Times
- Budget announces DLA reform
- Inaugural meeting of the APPG for ME: Wednesday 30th June
- Summary: ICD-11 Alpha Draft and iCAT (PVFS, ME and CFS)
- US “Clinical Modification” ICD-10-CM: Clarification
- ICD-11 Alpha Draft, iCAT Collaborative Authoring Platform and PVFS, ME, CFS
- Summary ME Association Board of Trustees meetings 14, 15 June 2010
- Two EDMs: Policy intentions toward Carers; Working Carers
- Benefits and Work: Tables turned – your chance to shop the DWP
- BBC News: “New benefit system labelled unfit”
- Benefits and Work: Huge new ESA guide plus Your future under the coalition
- MRC CFS/ME Research Workshop: Note in text format
- MRC Research workshop: Note and presentations published
- ICD-10-CM codings raised at 10 May CFSAC meeting
- RiME: Notice and Letters 11/5/10
- ICD-11 Alpha Draft: launch scheduled 10 – 17 May
- DSM-5 submissions collated on Dx Revision Watch site
- Invest in ME submission to DSM-5 draft proposals
- Mary Schweitzer letter to the APA on Complex Somatic Symptom Disorder (CSSD)
- Allen Frances MD on DSM-5 draft proposals and comment: Psychology Today
- CFIDS Association of America submits response to DSM-5 draft proposals
- DSM-5 submissions by US, UK and international patient organisations
- IACFSME publishes submission to DSM-5 public review process
- US Federal Chronic Fatigue Syndrome Advisory Committee: Minutes of October meeting
- Invest in ME: Letter to UK Secretary of State for Health (Blood donation)
- Action for M.E. Election manifesto
- MEA: Summary of APPG on ME meeting 10 March 2010
- RiME Notice: 15/03/10
- Former ME Association Chair, Chris Ellis, writes to Chair, APPG on ME
- BMJ: Issue 6 March 10: Focus on “CFS” and XMRV
- RiME: APPG on ME Legacy Paper
- FOI responses: XMRV testing by Molecular Diagnostics Unit, Imperial College, London
- CFIDS Association calls for input from experts into DSM-5 review process
- Agenda: APPG on ME meeting Wednesday, 10 March 2010
- Statement from P.A.N.D.O.R.A.: Ryan Baldwin case is an ominous wake-up call
- Adjournment Debate: Myalgic encephalopathy Mrs Annette Brooke 23 February 10
- New posts on Dx Revision Watch site
- ME debate: House of Commons, 23 February 2010
- FOIs and questions to Imperial College, London re XMRV testing
- RiME Letter to Daily Telegraph 10/2/10
- Donations and transfusions: Safety of the UK blood supply
- Imperial College MDU modifies its XMRV clarification notice
- Proposed revisions and draft criteria for DSM-5 categories published
- DSM-5 (DSM-V) proposed revisions and draft criteria published today
- Number10 e-Petition response
- ME Association not prepared to confirm source of XMRV “prostate cancer” test information
- Important statement from Imperial College, London (XMRV Detection Testing)
- The Prof Wessely XMRV Detection Test exchanges
- Complete text of Imperial College, London XMRV Detection Testing web pages
- Telegraph: Letters to the Editor: Breaking the ME enigma (jointly signed by ME spokespersons)
- Announcement about XMRV testing at Imperial College, London
- BBC accused of ‘promoting euthanasia by ignoring rights of disabled’
- ME Association position statement: XMRV testing at Imperial College, London
- Imperial College London to offer £200 XMRV test
- DSM-5 Draft Criteria Available for Public Comment 10 February through 20 April
- Comment published re: ‘The self-expressed needs of people with CFS/ME: a systematic review”
- PM’s response to AA and DLA Petition
- New documents on ICD-11 Revision site
- Kay (Kathleen) Gilderdale ME case: Media coverage 1 February 10
- ICL/KCL XMRV study: Responses to Authors’ Response on PLoS
- Times: ME coverage 30 January 10
- Dr William Reeves, head of CDC CFS Research Program to take up new position
- Kay (Kathleen) Gilderdale ME case on Panorama: 1 February
- Gilderdale ME legal case: Media coverage 26 January
- Kay (Kathleen) Gilderdale cleared of attempting to murder daughter with ME
- Times: ‘Doctors, school, friends thought I was faking chronic fatigue syndrome’ 25 Jan 09
- ICD-11 and DSM-V focussed editorials and articles: Advances in Psychiatric Treatment, Jan 10
- ME Association: Board of Trustees meetings: 18 and 19 January 2010
- DSM-V Somatic Symptoms Disorder Work Group presentation slides; draft due 10 February
- Bridget Kathleen (Kay) Gilderdale Court case: Lewes Combined Court: Media coverage: 3
- Bridget Kathleen (Kay) Gilderdale Court case: Media coverage: 2
- Extract from controversial start to December APPG on ME meeting
- RiME: Summary of APPG on ME meeting: 2 December 2009
- Minutes and Verbatim Transcript: APPG on ME meeting 2 December 2009
- Kathleen (Kay) Gilderdale Court case: 12 January 2010
- Documented involvement of viruses in ME/CFS: M Williams 30 December 09
- APA confirms publication date for draft proposals for DSM-5
- Concerns about Daily Mail “Is ME genuine illness” poll
- XMRV retrovirus replication: Round up 4
- Official Statement from the Whittemore Peterson Institute Regarding UK Study
- XMRV retrovirus replication: Round up 3
- Imperial College London News Release 06.01.10
- XMRV retrovirus replication: Round up 2 Patient org responses
- XMRV retrovirus replication: Round up 1
- Abstract paper: Failure to Detect the Novel Retrovirus XMRV in Chronic Fatigue Syndrome
- BBC: Research finds no proof that a virus is the cause of ME
- Kathleen (Kay) Gilderdale 12 January court appearance: 1
- visiNew Year, new look
- Response from Public Services Development Unit, National Archives
- Forward-ME: Minutes of meeting 24 November 2009
- Christmas and New Year on ME agenda
- Winter Solstice
- Can the MRC PACE Trial be justified: Margaret Williams 17.12.09
- The Elephant in the Room Series Four: DSM-V: What do we know so far?
- Report of Meeting of the All Party Parliamentary Group on ME by John Sayer
- American Psychiatry Is Facing “Civil War” over Its Diagnostic Manual What’s the real reason DSM-V has been delayed? Christopher Lane
- CFS Research Foundation: CFS/ME – XMRV Is there a connection?
- Statements of Concern about CBT/GET provided for the High Court Judicial Review of February 2009 M Williams
- Prof Tony Pinching to stand down as Action for M.E.’s Principal Medical Advisor
- The Medical Research Council’s secret files on ME/CFS: Margaret Williams
- Opinion on DSM-V revision: Psychiatric Times and New Scientist, 9 December
- Press Release: DSM-5 Publication Date Moved to May 2013
- The Elephant in the Room Series Four: New papers in Jan 10 Journal of Psychosomatic Research
- XMRV Retrovirus: Round up 25: WPI on DeFreitas, Hansard, MEA, AfME, Johnson
- Professor Simon Wessely on XMRV (2)
- Benefits cruelty of cancer patients
- Jobless to be offered ‘talking treatment’ to help put Britain back to work
- Benefits and Work: November and December 09 updates
- Justice for Families News December 2009: John Hemming
- XMRV Retrovirus: Round up 24: Testing and news of research studies
- ME Association: Summary of meeting of APPG on ME 2 December 2009
- Register of All-Party Groups and Guide to the Rules on All-Party Groups
- Action for M.E: Initial responses to the APPG interim report
- ME Association: Interim report of the APPG on ME inquiry into NHS Services
- Inquiry into NHS Service Provision for ME/CFS Interim Report
- APPG on ME meeting: Wednesday 2 December 09
- RiME: Summary of APPG Meeting 21.10.09
- APPG on ME: Minutes, Transcript, Legacy Paper, Updates to Welfare Reform Bill
- Minutes of the MRC CFS/ME Expert Group 2nd meeting: 30 March 2009
- Next APPG on ME meeting: Delay in production of the Minutes
- The Role of Viruses in ME/CFS, XMRV and the MRC PACE Trial: Margaret Williams 21 November 2009
- Participant List: MRC CFS/ME Research Workshop
- Benefits and Work: Final newsletter No More Benefits Cuts Campaign
- GMC: More than 218,000 doctors now have a Licence to Practise
- RiME: XMRV and MPs Referendum on ME Research
- MRC Research Workshop: Final Agenda
- APPG on ME: Agenda meeting 2 December 2009
- MRC: Withholding List of Participants for MRC CFS/ME Research Workshop
- Prof Peter D White: Neurology and Psychiatry SpRs Teaching Weekend
- More evidence of inflammation in (ME)CFS: M Williams 14 November 2009
- Sunday Times: Health and safety snoops to enter family homes
- XMRV Retrovirus: Round up 23: WPI NYT article, Coffin on NPR Radio, papers
- Declaration of interests for the CFS/ME Expert Group
- MRC CFS/ME Workshop: Revised Agenda and response re List of Participants
- Benefits and Work: Hundreds of claimants unjustly imprisoned
- APPG on ME: Next meeting 2 December 2009 progress report
- Two responses around XMRV: Prof Simon Wessely; Dept of Health
- CMO response to ME Association letter around XMRV and Blood Donation
- Text of Agenda for November MRC CFS/ME Workshop and AfME response
- Agenda: MRC CFS/ME Research Workshop 19-20 November 2009
- Top scientists to meet at Cleveland Clinic on trail of XMRV
- Benefits and Work: You’re not so easy to silence
- Times: Reference to ME patient and threat of legal action, 10 November 2009
- Medically Unexplained Psychologising of ME (MUPs) by Peter Kemp
- XMRV Retrovirus presentations: Klimas, de Meirleir, Hyde
- ME in Parliament: Written answers 5 November 2009
- Correspondence between Stephen Ralph and Dr Charles Shepherd
- Dr Byron Hyde, MD: Reference to XMRV retrovirus in Goteborg Conference address
- 25% ME Group announces Byon Hyde MD as new Patron and Medical Advisor
- XMRV Retrovirus Round up 22: WPI Press Release, ESME, 74 CFSAC meeting videos
- ME Association: Updates: Blood Donation, XMRV and ME/CFS Version 3
- XMRV Retrovirus: Round up 21: CFSAC videocasts, Testing, Media, CDC Chatter Blog
- Guardian: Bending the rules
- RiME: Newsletter No. 11
- Benefits and Work: DLA saved – for some
- Paper: Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome
- XMRV Retrovirus Round up 20: Reno Gazette, NYT Letters
- XMRV Retrovirus: Round up 19: XMRV Blood Safety and Availability from HHS (US), PhD study
- Action for M.E. and Facebook; CISSD Final Report finally published
- XMRV Retrovirus: CFSAC meeting Day Two
- XMRV Retrovirus: What’s coming up?
- ME in Parliament: Written Answers: 26 June, 1 July, 7 July 09
- XMRV and ME/CFS: The MEA writes to the Chief Medical Officer
- Dr Nigel Speight resigns from children and young person’s organisation AYME
- Future of DLA: Health Secretary Andy Burnham speech, Benefits and Work updates
- Interim XMRV Guidelines National Cancer Institute, testing and CFSAC meeting
- Lecture by Nancy Klimas MD: The New XMRV Virus and What it Means to Chronic Fatigue Syndrome Patients
- Journal of Psychosomatic Research: In Press: Is there a better term than “Medically unexplained symptoms”?
- IACFS/ME statement, CFSAC meeting, Reeves CFS Definition Petition
- MEA summary of meeting of APPG on ME (21 October 2009) and APPG Legacy paper
- Revised MEA statement on retrovirus XMRV and ME/CFS
- Professor Peter D White document to CNCCs re XMRV and CFS
- NIH $1.6 Million award for ME/CFS Research for Drs. Mikovits & Kerr
- XMRV Retrovirus Whittemore Peterson CFS study Media Round up 12
- MRC Two day Research Workshop 19 and 20 November 2009
- XMRV Retrovirus Whittemore Peterson CFS study Media Round up 11
- Whittemore Peterson Institute XMRV retrovirus study link with CFS: Media Round up 10
- CFSAC Agenda Presentation: XMRV Association with CFS Dr D Peterson
- ME Research UK response to XMRV study “XMRV and ME/CFS – A stunning find”
- XMRV Retrovirus: Notice from Dr David Bell Lyndonville News; Article by Dr Paul Cheney MD
- XMRV Retrovirus: information about tests and testing
- XMRV retrovirus study: Position statement from ME Association 14.10.09
- XMRV Retrovirus: Whittemore Peterson Institute: CFS: Media Round up 7
- XMRV Retrovirus: Whittemore Peterson Institute Chronic Fatigue Syndrome study: Videos
- Supporting Online Material for XMRV Chronic Fatigue Syndrome study
- Next APPG on ME: Wednesday, 21 October 2009
- XMRV Retrovirus: Whittemore Peterson Institute Chronic Fatigue Syndrome study
- Whittemore Peterson Institute (WPI) Chronic Fatigue Syndrome retrovirus XMRV in the media
- Whittemore Peterson Institute (WPI) Chronic Fatigue Syndrome link to retrovirus XMRV
- Science 9 October 2009: Whittemore Peterson Institute (WPI) Chronic Fatigue Syndrome link to retrovirus
- Benefits and Work: Charities claim it’s too late to save DLA and AA
- Observer: Flagship mental health scheme faces cutbacks 04.10.09
- ME Association: ‘Shaping the Future of Care’ response to Green Paper
- RiME: Lightning Process – request for experiences
- ICD Revision Advisory Groups: Mental and Behavioural Disorders and TAG Neurology
- APPG on ME: Minutes and Transcript for 8 July 2009 meeting
- The Elephant in the Room Series Three: Who’s watching the WHO?
- Benefits and Work campaign: DLA is not under threat says minister
- ICD-11 iCAMP on YouTube: Week Two
- Charities concerned over changes to Mental Health Act in event of Swine Flu pandemic
- Benefits and Work Campaign: Save DLA and AA: have you signed the No 10 petition yet?
- ICD-11 iCAMP on YouTube
- ME Association now registered as “ME Society”
- Reference to Psychological Medicine manuscripts in Summary of 4th meeting of Advisory Group for Revision of ICD-10 Chapter V
- Summary Report: 4th Meeting of International Advisory Group for Revision of ICD-10 Mental and Behavioural Disorders
- ME Association: Summary Board of Trustees meeting 7, 8 September 09
- Sunday Times: Question a doctor and lose your child
- The Elephant in the Room Series Three: DSM, ICD: transparency and timelines
- Save DLA and AA (Benefits and Work): Campaign update
- Benefit Busters C4: Catch up on episodes 1 and 2 on 4oD
- Scots MSPs join fight to save DLA and AA plus Pathways crumbling (Benefits and Work)
- MRC publishes Minutes of 1st “CFS/ME Expert Panel” meeting
- Interstitial cystitis and Chronic Fatigue Syndrome: Margaret Williams 26.08.09
- Save DLA and AA: time to have your say (Benefits and Work)
- The Elephant in the Room Series Three: Action for M.E. stuffs the elephant back into the cupboard
- Cinder Bridge song about ME to air on 19 August
- Save DLA and AA: the second task (Benefits and Work)
- Times Letters: British intervention in healthcare debate in the US and our NHS
- The Elephant in the Room Series Three: Channel 4: Benefit Busters; A4e and the Sykes brothers
- Update on 100 days to save DLA and AA from the axe (Benefits and Work Campaign)
- MRC CFS/ME Expert Group: Finalised Terms of Reference
- RiME: Summary APPG on ME meeting 8 July 2008
- 100 days to save DLA and AA from the axe (Benefits and Work Campaign)
- Amendments to the WHO Guide to Mental and Neurological Health in Primary Care website
- NICE Guidance on when to suspect child maltreatment (CG89)
- Scottish Good Practice Statement and conference: Update
- Concerning a recent statement and report published in the wake of the Judicial Review of the NICE Guidelines on CFS/ME
- BBC Radio 4: Rewriting The Psychiatrist’s Bible Tuesday 4 August
- RSM “Medicine and me” event: Commentary by John Sayer
- Green Paper: Shaping the Future of Care Together Consultation
- Invest in ME: Statement regarding Forward-ME
- Documented pathology seen in ME/CFS that contra-indicates the use of GET: Margaret Williams 23 July 2009
- Statements of Concern about CBT and GET provided for JR: Margaret Williams 22 July 2009
- Round up of Scottish ME and CFS issues
- GOSH gives platform to Lightning Process
- Forward-ME: Minutes of meeting 8 July 2009
- The Elephant in the Room Series Three: ICD-11 Topic Advisory Group for Neurology
- The Elephant in the Room Series Three: Further criticism of the DSM-V revision process
- Closing date for APPG questionnaires on NHS services for people with ME
- APPG on ME meeting: 8 July 2009 and Inquiry into NHS services 1st Oral Evidence session: 9 July 2009
- Hansard: Vaccine Damage Compensation Debate 8 July 2009
- The Elephant in the Room Series Three: Criticism in Psychiatric Times of the DSM-V revision process
- The Elephant in the Room Series Three: Latest proposals from DSM-V Work Group
- Change of venue for APPG on ME meeting, Wednesday 8 July
- APPG on ME inquiry details for evidence sessions, 9 and 16 July
- Next meeting of the APPG on ME: Wednesday 8 July 2009
- Invest in ME: Statement and letter to Prime Minister (e-petition)
- Number 10: Invest in ME Conference Petition: Response
- Kathleen (Kay) Gilderdale court hearing: 3 July 2009
- RiME: NHS Services Inquiry Notice 6 26 June 2009
- ME in Westminster: Debate: Welfare Reform Bill 18 June 2009
- The Elephant in the Room Series Two: ICD-10 Version for 2006 Volume 3 Alphabetical Index
- MEA: Summary Board of Trustees meeting 15 and 16 June 2008
- ME in Westminster, 5 May, 6 May, 13 May 2009
- RiME: NHS Services Inquiry Notice 5 June 2009
- APPG on ME: Agenda for next meeting Wednesday 8 July 2009
- APPG on ME: Minutes and transcript, meeting 1 April 2009
- APPG on ME Inquiry into NHS services: Patient Questionnaire
- RiME: Sussex Services June 2009
- The Elephant in the Room Series Two: Status of the CISSD Project unscrambled
- The redacted bits (Sykes’ CISSD report for the MEA)
- CISSD Project: Report from Dr Richard Sykes
- Videocast: Chronic Fatigue Syndrome Advisory Committee Meeting (Day 1)
- £13 home-test kit developed for ME (Kenny de Meirleir)
- RiME: NHS Services Inquiry, Confusion re. Deadlines 27 May 2009
- CFSAC Agenda – Wednesday 27 and Thursday 28 May 2009 U.S.
- Slip slidin’ away (APPG on ME inquiry into NHS services for ME)
- The proposed diagnosis of somatic symptom disorders in DSM-V to replace somatoform disorders in DSM-IV – a preliminary report
- Journal “FATIGUE”: What’s in a name (Co-Cure)
- The Elephant in the Room Series Two: More on MUPS
- New Journal “FATIGUE”: What’s in a name?
- An economic analysis of this new fatigue Journal from a consumer point of view: Ciaran Farrell
- What Fatigue? A few quotes from the literature on ME and fatigue, Greg Crowhurst
- More on journals and the “F” word
- The Elephant in the Room Series Two: DSM-V Revision Activities: New reports
- A Journal called What?
- BBC One: The Politics Show, Sunday 10 May: APPG on ME segment
- RSM “Medicine and Me” event: ME and CFS – Hearing the patient’s voice
- ME/CFS: Classification Issues by Margaret Williams, 3 May 2009
- RiME: NHS Services Inquiry, 4 May 2009
- ME/CFS: Terminology: Margaret Williams 27 April 2009
- Concerning Ryan Baldwin: Please send a card
- Kathleen (Kay) Gilderdale court appearance
- Latest on APPG on ME inquiry into NHS services
- RiME: Comments re. Surveys for APPG on ME NHS Services Inquiry
- Independent: What’s wrong with you? It depends where you live (Wessely)
- NICE CFS/ME guidelines judicial review: Reflections on video
- APPG on ME: Changes to the secretariat service
- Action for M.E. seeks Policy Manager/political lobbyist
- The Elephant in the Room Series Two: Editorial: The proposed diagnosis of somatic symptom disorders in DSM-V to replace somatoform disorders in DSM-IV
- RiME: NHS Services Inquiry 22 April 2009
- Kathleen (Kay) Gilderdale case: Media coverage 21 April 2009
- Kathleen (Kay) Gilderdale case: Media coverage 17 April 2009
- CDC Stakeholders’ meeting on CFS Strategic Research Plan and e-Petition
- Kay (Kathleen) Gilderdale on ME daughter charge
- The Elephant in the Room Series Two: MUPSS Project: Sykes, Psychiatry and Psychosomatics conferences
- The Elephant in the Room Series Two: Update on CISSD Project, FOI responses, Sykes/WHO Collaborating Centre “MUPSS Project”
- Baroness Thornton: Response to issues raised in Lords CBT debate
- Kay Gilderdale bail extended
- New Scientist: Letters in response to Simon Wessely interview
- ME in Parliament: House of Lords 26 March 2009
- APPG on ME Inquiry: Video reports
- APPG press release: NHS inquiry
- National ME Observatory: Where’s the website?
- Inquiry into NHS service provision for people with ME launched at APPG on ME
- The Elephant in the Room Series Two: WHO Guide to Mental and Neurological Health in Primary Care
- The Elephant in the Room Series Two: Use of “Somatoform Disorders” and “Functional somatic syndromes”
- The Elephant in the Room Series Two: DSM-V Directory
- Poll: The ME Association and the use of “The ME Society”
- What’s in a name? The ME Association and its use of “ME Society”
- RiME: Clinics – Yorkshire
- 25% ME Group resigns from Forward ME
- Summary: Meeting, MEA Board of Trustees 17 March 2009
- House of Lords Debate: Health: Cognitive Therapy, 18 March 09
- New Scientist Simon Wessely “interview” comments
- APPG on ME: Agenda for meeting on 1 April 2009
- NICE CFS/ME Guideline Judicial Review: Media coverage
- New Scientist: “Interview” with Prof Simon Wessely
- Examples of concerns raised by professional bodies about the NICE (draft) Guideline CG53 on “CFS/ME”
- Action for M.E. statement: High Court challenge against NICE is dismissed
- PRESS STATEMENT: NICE statement on CFS/ME judicial review outcome
- 25% ME Group response to NICE CFS/ME Judicial Review
- NICE Guideline on CFS/ME: Judicial Review judgement
- The WHO Somatisation Project [CISSD Project]: The Elephant in the Room Part Ten
- Judicial Review NICE Guideline CG53: Latest news
- Gilderdale family case: Media coverage: 6 March 2009
- Number 10: Invest in ME Conference Petition
- APPG on ME: Next meeting to be held on 1 April 2009
- Prof Peter White discouraging RSM Conference from using ICD-10
- CISSD Project: Commentaries from Stephen Ralph; Connie Nelson
- The WHO Somatisation Project [CISSD Project]: The Elephant in the Room Part Nine
- RiME: New website and domain name
- CFS/ME Clinical & Research Network & Collaborative (CCRNC) 2009 Conference
- MEA: Judicial Review: Summary of High Court proceedings
- The WHO Somatisation Project [CISSD Project]: The Elephant in the Room Part Eight
- The WHO Somatisation Project: The Elephant in the Room Part Seven
- JR Media coverage: BBC: ME pair appeal ‘unfair NHS rules’
- Dr Bruce Carruthers supports Judicial Review of NICE Guideline CG53
- Judicial Review: NICE Guideline CFS/ME: ONE CLICK Information Release
- The WHO Somatisation Project: The Elephant in the Room Part Six
- ME Association fully supports legal challenge to the NICE Guideline on ME/CFS
- The WHO Somatisation Project: The Elephant in the Room Part Five
- The WHO Somatisation Project: The Elephant in the Room Part Four
- Judicial Review of the NICE Guideline CG53 for CFS/ME: Press statement
- WHO Somatisation Project: The Elephant in the Room Part Three
- Preview of the NICE Judicial Review: Margaret Williams, Horace Reid
- The WHO Somatisation Project: The Elephant in the Room Part Two
- The WHO Somatisation Project: The Elephant in the Room
- MEA: Summary Board of Trustees meeting: 27 January 2009
- Funeral arrangements for Lynn Gilderdale
- Response to Great Yarmouth and Waveney Joint Health Scrutiny Committee document
- Great Yarmouth and Waveney Joint Health Scrutiny Committee: 16 January 09
- Countdown: Judicial Review NICE CFS/ME Guideline
- The use of practice nurses in the management of ME/CFS
- European Court rules on accrual of annual leave for the long-term sick
- Next meeting of the APPG on ME
- NHS service in Norfolk and Suffolk: patients launch new website
- mySociety campaign to stop MPs concealing their expenses
- Times: Court challenge to NICE over osteoporosis treatment
- ME in Scottish Parliament: Disability Discrimination Act
- Journal of Psychosomatics: Issue November-December 2008: Error in URL
- ME in Parliament: Written Answers, 8 and 12 January 2009
- YouTube: What happened to Sophia Mirza who died from ME/CFS
- Scottish Cross Party Group on ME: Julia Newton to speak at January meeting
- Lynn Gilderdale: Media coverage, 12.01.09
- NICE Guideline on CFS/ME Judicial Review: Media coverage 13.01.09
- Judicial Review NICE Guideline in London UK – only 1 month to go!
- Does Action for ME operate openly and is it fulfilling its obligations to the Big Lottery Fund?
- House of Commons Recess dates for 2009, APPG on ME inquiry
- MRC “CFS/ME Multidisciplinary panel”: Update on Terms of Reference
- The NICE M.E. Guidelines Judicial Review new YouTube video
- NICE Judicial Review: scheduled for 11 and 12 February
- ME patient organisation end of year round up
- RiME: Request for used Christmas cards
- A NICE Conundrum? Margaret Williams 30.12.08
- Selected papers co-authored by Dr Christopher Bass
- Dr Chris Bass (PULSE somatoform disorders article) and UNUM
- NIVEL study: Recommended treatment of ME/CFS often detrimental
- Lynn Gilderdale Tribute site
- PULSE: MEA responds to article on somatoform disorders
- ME/CFS:UK versus US by Margaret Williams, 22.12.08
- Admin: Christmas on ME agenda
- 25% ME Group: Statement on the death of Lynn Gilderdale
- Lynn Gilderdale: Media coverage, 22.12.08
- More midwinter madness from our government
- Winter solstice
- A NICE DILEMMA by Margaret Williams, Part Three
- A NICE DILEMMA? by Margaret Williams, Part Two
- A NICE DILEMMA? by Margaret Williams, Part One
- MRC multi-disciplinary panel “expert panel”: inaugural meeting
- Independent: Letters
- PULSE: Published responses to Bass article
- PULSE: Chronic fatigue syndrome and somatoform disorders, contrary views
- Lynn Gilderdale: Media coverage, 17.12.08
- Forward-ME, Countess of Mar: Minutes available
- APPG on ME: Minutes of meeting, 8 October 2008
- Date for RSM ‘Medicine and me’ meeting
- Lynn Gilderdale: Media coverage, 13.12.08
- FOI Request: MRC CFS/ME multi-disciplinary panel members list
- Lynn Gilderdale: Media coverage, 12.12.08
- RiME: NHS Services Inquiry (APPG) – May Day
- Lynn Gilderdale: Media coverage, 11.12.08
- Lynn Gilderdale: Media coverage, 10.12.08
- Latest on death of Lynn Gilderdale: Telegraph
- The use of the term “Yuppie Flu”: Another plea to journalists
- Media coverage of death of Lynn Gilderdale
- Lynn Gilderdale
- Arrest over ME campaigner’s death
- Countess of Mar group Forward-ME website
- Countess of Mar: Second letter to RiME
- Changes to WordPress interface
- Forward-ME and The Countess of Mar
- Round up of APPG and patient organisation items: 02.12.08
- “Infighting”, “bickering” and “squabbles”?
- The Countess of Mar: Margaret Williams 22.11.08
- CONSPIRACIES AND BETRAYAL: Is NICE really nice? Gurli Bagnall
- Countess of Mar: Comment from Dr Derek Enlander
- Statement from the 25% ME Group
- Position statement on the issue of the minutes of 15 May public Open Forum meeting from Ciaran Farrell
- Enquiry regarding status of ME Alliance
- APPG draft TOR: Correspondence with the office of Dr Ian Gibson
- Correspondence between RiME and Lady Mar
- All the NICE girls love a sailor…
- “People who know absolutely that they are right are very dangerous”
- RiME: Response to Draft TOR for APPG Inquiry into NHS Service Provision
- NHS services inquiry: Will the APPG reconsider?
- 25% M.E. Group response to draft TOR for APPG Inquiry into NHS service provision
- RiME: Letter from Countess of Mar
- Confident domination by Greg Crowhurst (APPG Inquiry ToR)
- MRC “CFS/ME” multi-disciplinary panel: FOI (2)
- Parry, PRIME, Minervation and the ME Observatory
- APPG Inquiry: Is this what we want and do we want it now?
- APPG Inquiry Terms of Reference: Response from Greg Crowhurst
- NHS services inquiry: Response from Invest in ME
- NHS services Inquiry draft Terms of Reference: A response from Ciaran Farrell
- Comments on Draft Terms of Reference for APPG Inquiry into NHS service provision
- A need of accountability and a firm resolution: update 11.11.08
- MEA: Summary Board of Trustees meeting: 7 November 2008
- Constitution of the APPG on ME: a clarification
- Radio 4: 10 November 8.00pm Incapacitated
- The Countess of Mar’s meeting with ME patient organisations
- Not adequate, not safe, not acceptable (NHS services draft Terms of Reference), Greg and Linda Crowhurst
- 25% M.E. Group’s responses for meeting with Countess of Mar
- A brief note for brief therapists
- RiME: Summary October APPG meeting
- APPG Secretariat
- Response from AfME re concerns re deadline for draft Terms of Reference comments
- Concerns about tightness of deadline for NHS services inquiry draft Terms of Reference consultation
- Deadine for comments on Terms of reference, APPG Inquiry into NHS service provision
- NICE Judicial Review documents: Margaret Williams
- Radio 4: Employment Support Allowance
- Disclosure by AfME of composition of National ME Observatory Steering and Management Groups
- Simon Wessely presentation at Columbia’s Center for Bioethics
- From the literature: ten reasons not to implement the NICE Guideline on “CFS/ME”
- Reasons for Judicial Review of the NICE Guideline on “CFS/ME”: Williams
- MEA: New government benefit to replace ICB is introduced today
- YouTube: UK All Party Parliamentary Group on ME to carry out inquiry
- New YouTube channel: action4change4me
- Media coverage: Demonstrating for the right to protest in Liverpool
- Times: I may be paranoid, but they are watching us
- AfME: People with chronic illness “terrified” by welfare reform proposals
- Society Guardian: Sick of the system by Melissa Viney
- MEA’s response to Work and Pensions Green Paper
- APPG on ME Inquiry on NHS service provision: Draft terms of reference
- Benefits and Work: October newsletter available now
- NICE Guidelines Judicial Review: update for supporters
- APPG on ME: Brief notes on meeting 8 Oct, Dr C Shepherd
- Countess of Mar’s Secret Pharmaceutical Industry Bomb
- All Party Parliamentary Group meeting on M.E.: some thought
- Letter to AYME: Your articles on CBT and the lightning process
- Lack of unity given that patients fully support G93.3?
- Sunday Times: Government will spy on every call and e-mail
- APPG on ME: Minutes of meeting, 2 July 2008
- MRC: FOI, peer review reports relating to unsuccessful proposals
- PACE Trial: Vacancies for administrative personnel and therapists
- 10th International Congress on Behavioural Medicine: CFS presentations
- BBC News: Setback in retirement age battle
- NICE legal challenge: Launch of supporters’ website
- Positions on RSM Bristol conference from TYMES Trust and 25% M.E. Group
- Bristol RSM Conference: Where is the action?
- YouTube video: The PM speaks on ME/CFS and MRC
- Benefits and Work: September newsletter now available
- RSM Bristol: Eve of Conference Open Letter, ME Free For All
- Two letters in the print edition of the Times, 16 September
- Dr H O’Dowd: HTA CBT paper; Dr. Bill Long: Critical Assessment for Judges and Lawyers (MSBP)
- RCPsych welcomes IPCC report concerning the use of police custody as “place of safety” under Mental Health Act
- Two UK regional “CFS” conferences in September and October
- Registration Form and Agenda: Bristol regional RSM CFS Conference
- RiME: MPs Referendum
- Chronic Fatigue and Ethnicity, MRC, Bhui, Nazroo (PIs)
- The Medical Research Council: a case to answer? Dr Neil Abbot
- APPG on ME Draft Agenda for meeting, 8 October 2008
- 25% ME Group response: Redditch Standard
- Bristol Evening Post, 9 September 2008, Dr John Greensmith
- Times: Letters to the Editor, ME needs research, 10 September
- RSM “CFS” Conference, Bristol 18 September
- Update on planning of RSM “Medicine and Me” conference
- Heads up: next APPG on ME meeting
- Summary MEA Board Meeting: 2 September 2008
- Benefits and Work: August newsletter now available
- ME and the new corporate controlled NHS: Greg Crowhurst
- Medication and ME/CFS?: Margaret Williams, 27.08.08
- Bromsgrove Standard: Coverage of inquest of Mrs Nicola McNougher
- Clarification from BBC Midlands reporter, Michele Paduano
- BBC Midlands video: Woman with ME takes own life, edited
- BBC News: Woman’s clinic death was suicide
- BBC News: Woman with ME takes own life
- RiME: Newsletter No. 10 is now available
- 12th May ME “Peoples Day” events: Patron resignation
- Round up of links for Prof Peter Denton White’s views on ME and “CFS”
- Radio 4 discussion on ME/CFS and Incapacity Benefits
- More Zombiefication of ME/CFS?: Margaret Williams
- Zombie Science in ME/CFS? Margaret Williams
- More control freakery from our Government
- Two media items: CBT for MUS, GPs fail to spot Hep C
- R4 You and Yours: Transcript for Welfare Green Paper item
- Update on proposed RSM “Medicine and Me” event
- Greg Crowhurst: Spinning the web, John Sayer, MES-N
- Professor Malcolm Hooper, Journal of Clinical Pathology and Wikipedia
- Benefits and Work: July newsletter now available
- ME Association keeps mum on Stafford/Collyer Amazon trek split
- Letters in response to “Who’ll be first to offer disabled people a job?”
- Dr Speedy scoops exclusive interview
- Worm alert on AfME (Action for ME) web pages, 26 July
- MEA writes to DWP: Employment and Support Allowance
- Two bloggers: one delighted, one deleted
- Welfare Reform: Press release and documents
- You and Yours: Monday 21 July: Benefit Reforms, interview with ME sufferer
- Welfare Reform Green Paper leaked on Sky News
- Three CBT news items
- Information Commissioner’s Decision correspondence
- MRC and MEA meet to discuss biomedical research into ME/CFS
- RCGP agrees to stop classifying CFS as mental health disorder
- Disabled ‘wrongly denied’ benefit
- Times: Europe to begin investigation of secrecy in family courts
- Child Protection Issues: presentations to the APPG on ME, 2 July 2008
- Squeeze the psychs out of M.E.: Prof Wessely RSM presentation
- Parents beware: The ONE CLICK Group commentary
- Disclaimer: ME charities and patient organisations
- Family courts, Family Justice: Times coverage, 07.07.08
- BBC: Talking therapy plans under fire
- Presentation by Joanna Smith, APPG on ME meeting, 2 July 2008
- Summary of APPG meeting: Wednesday 2nd July 2008
- John Sayer: Position statement on inclusion of “fatigue illnesses”
- RSM Conference: Presentation webcasts and PDFs
- RSM Conference webcast: Prof Chris Dowrick
- APPG meeting on Wednesday, 2 July: Change of room
- RSM webcasts, Dr A Cleare and Prof M Hotopf
- RSM CFS Conference: First three webcasts plus abstracts
- Summary ME Association Board of Trustees meeting, 24 June 2008
- Statement regarding the promotion of events associated with Ms Diane Newman
- RSM CFS Conference: an ETA for webcast
- RiME: Update on issues with Minutes of APPG meeting 12 July 2007
- MP3 of broadcast, BBC Radio Norfolk, 19 June
- APPG on ME: Agenda for meeting and AGM, 2 July 2008
- Transcript: BBC Radio Norfolk, Ian Gibson, May 2007
- Transcript: BBC Radio Norfolk, Thursday 19 June 2008
- Update on proposals submitted to MRC relating to CFS/ME
- Action for ME: Have they held AGMs?
- NICE JR lawyer and Ian Gibson speaking on BBC Radio Norfolk
- Norwich ME sufferer wins court ruling (NICE CFS/ME Judicial Review)
- Thanks to M.E. Support Norfolk
- Judicial Review: Judgement Guidance
- Summary of application hearing, NICE CFS/ME judicial review
- Justice for Families May 2008 Report
- NICE CFS/ME Judicial review of NICE Guideline to go ahead
- Application: Court hearing, JR Tues 17 June 2008
- ME in Parliament: Vince Cable, ME biomedical research
- UK Member Of Parliament Threatens One Click
- Right of reply: John Sayer, Chair, M.E. Support-Norfolk
- BRAME: Statement, Ann Keen, Lord Darzi
- There is a place beyond anger: Greg Crowhurst
- ME in the Big Issue North, again
- Jeremy Clarkson’s mother speaks out on ME
- Minutes: APPG on ME, 22 January 2008
- Next meeting of the All Party Parliamentary Group on ME
- A date for the next APPG on ME meeting
- One Click Judicial Review, CFS/ME NICE Guidelines
- The current status of the APPG on ME
- Press Release: Judicial Review details
- Next APPG on ME and Minutes of January APPG meeting
- Application for Judicial Review of the NICE guideline on “CFS/ME”
- MEA: House of Lords Oral Questions to Lord Darzi on ME/CFS
- MRC “CFS/ME” multi-disciplinary panel: Request under FOI
- Countess of Mar: House of Lords 2 June 2008
- Dr Ian Gibson MP: Position statement on the NICE CFS/ME Guidelines
- MEA correspondence with RCGP
- (Amendments to) NHS Plus leaflets on Occupational aspects of CFS/ME
- Prof Mansel Aylward and the RSM
- Faculties Failure? Margaret Williams
- ME in Parliament: May 2008 (2)
- Petition: Limit promotion and delivery of CBT within the NHS
- Response to standard response issued by Ian Balmer, CE, RSM
- Stand back a minute! by Greg Crowhurst
- Dr J Greensmith’s response to This is Bristol article
- Dr Esther Crawley condemns AfME Survey as “unreliable”
- ME in Parliament: May 2008
- Joint statement: MEA and The Young ME Sufferers Trust
- AfME: Government failing most vulnerable
- ME Association position on graded exercise therapy (GET)
- MEA: Summary of Prof Peter D White’s RSM presentation
- RSM “Medicine and Me” Events
- RSM: Beyond Pathways to Work: Health, Work and Well-being
- RSM: Key advances in the treatment of PTSD
- Letter from Ian Balmer, CE, RSM
- Third Sector AfME article: a clarification
- AfME Survey results, 12 May 2008
- InterAction magazine May 2008: RSM conference
- InterAction magazine May 2008: One year on and New Trustees
- RSM Protest video from GBCOne
- Third Sector AfME article: Comment 4 and 5
- MRC CFS/ME “multi-disciplinary panel” FOI request
- The MEA and the James Lind Alliance
- Open Forum: House of Commons, 15 May
- Third Sector: Action for ME in membership row, 07.05.08
- Yuppie flu: A plea to journalists
- ME in Parliament: 28 April, 29 April and 1 May
- RiME Referendum
- New Statesman: Wessely article
- Status of the APPG on ME: Time to start asking questions?
- Observations on the RSM protest: Joan Crawford
- Changing attitudes: RSM Conference leaflet
- RSM Conference: brief report from organiser
- A message from Sophia’s mother
- CFSRF statement re MRC CFS/ME panel
- Government confirm plans for MRC panel
- Final call for the RSM Protest
- All good wishes to the RSM Protest Group for Monday’s demo
- Presentation letter from Mrs Sheila Barry to Dean, RSM
- Open letter to the President of the RSM
- A Follow-up to “Concerns about the RSM Conference”: M Williams
- Summary of MEA board of trustees meeting: 18 April 2008
- Dr John Scadding, Dean RSM and The James Lind Alliance
- Concerns about the RSM Conference on “CFS”: M Williams
- Can AfME claim a mandate to represent “The patient perspective”?
- Professor Simon Wessely: Retired, tired or hired?
- Therapy for ME under fire: Martin Guttridge-Hewitt
- ME in Westminster: 3 April 2008
- RiME: Referendum: Latest
- Petition: NHS CBT
- Final reminder: RSM Postcard Campaign
- Postcard to Dean, RSM: Dr John Greensmith
- “On a Postcard, please” Campaign Flyer
- DVD set of Southampton Conference
- ME in Parliament: 3 March 2008
- RSM demo: Update from Organiser, Gus Ryan
- Protest | RSM Conference | London | 28 April
- RSM – ME: psychosocial school & insurance companies, Frank Twisk
- Dr Enlander calls on HRH for Removal of the Royal patronage
- YouTube video: GBCOne: Sweet charity?
- “On a Post Card, please” Campaign
- MEA issues revised statement on RSM Conference
- RSM CFS Conference PDF of Programme
- The Young ME Sufferers Trust: RSM CFS Conference statement
- FT, Dr Margaret McCartney: If it’s in the mind, it’s still the real thing
- Dr Derek Enlander MD, writes to Editor, Daily Telegraph
- 25% Group position statement on RSM CFS Conference
- My “Pillow Fight” letter in Western Daily Express: Dr John Greensmith
- Dr Enlander MD, writes to DHHS CFS Advisory Committee
- Action for ME censoring comments on YouTube
- Telegraph: ME: Invisible disease is now easier to read
- ME Association issues position statement on RSM CFS Conference
- Critical illness insurance claims and ME
- Southampton biomed research conference DVD
- Further statement from Action for ME on RSM CFS Conference
- Evidence of Efficacy? Margaret Williams, 10 March 2008
- Dr Derek Enlander MD writes to Dean, RSM
- RSM demonstration 28th April 2008: Update 1
- Royal Society of Medicine demonstration: 28.04.08
- Deliberate Deceit or Inexcusable Ignorance? Margaret Williams, 4 March 08
- M.E. Peoples Day Events 12th and 15th May 2008
- Wake up to Action for ME: Response to Colin Barton
- Wake up to Action for ME: Response to Pelham PR
- The UK Charity Action for ME Exposed – Again!
- Statement 12: Report, Brian Ashworth and The Orchard Centre: Part Three
- Statement 12: Report, Brian Ashworth and The Orchard Centre: Part Two
- Statement 12: Report, Brian Ashworth and The Orchard Centre: Part One
- Royal Society of Medicine Conference: 28 April, AfME statement
- Benefits and Work: Will you challenge the benefits millionaire maker?
- Patients Declare UK New Labour Party Is Finished
- ME-is-real petition: Government’s response
- ONE CLICK Judicial Review: Campaign Update 4
- MEA writes to ‘Magistrate’ magazine and the Youth Justice Board
- PDF Statement 12: Report and update on Brian Ashworth and The Orchard Centre
- Report and update on Brian Ashworth, The Orchard Centre, Bilston, West Midlands
- RiME Summary of APPG Meeting 22/1/08
- Justice for Families, January 2008
- ONE CLICK CFS/ME NICE Judicial Review: Campaign Update 3
- Summary of MEA board of trustees meeting: Thursday 24 January 2008
- Revised version of APPG meeting, January 22 – a personal summary, C Shepherd
- NICE CFS/ME Judicial Review clarification
- APPG meeting, January 22 – a personal summary by Dr Charles Shepherd
- Reminder: APPG on ME meeting, today, Tuesday 22 January
- Agenda for Cross-Party Group on ME, Edinburgh, January 23
- ONE CLICK CFS/ME NICE Judicial Review: We did it!
- MEA announces “Associate Trusteeship”: Comment
- Essential investigations for people with ME/CFS? by Margaret Williams
- NICE CFS/ME Guidelines Judicial Review: ONE CLICK reaches target
- ONE CLICK NICE Judicial Review update, 15 January
- ONE CLICK NICE Judicial Review update, 14 January
- ONE CLICK NICE Judicial Review update, 11 January
- HOW TO HONOUR YOUR PLEDGE CFS/ME NICE GUIDELINES JUDICIAL REVIEW
- Clarification: article “More potential dangers of the UK NICE Guideline on “CFS/ME” for people with ME/CFS?”
- Re: RiME letter and Agenda Item 2: forthcoming APPG on ME meeting
- APPG on ME: Agenda for meeting 22 January 2008
- More details on honouring ONE CLICK JR pledges for non UK residents
- Panorama: One Click from Danger (vulnerability of youngsters online)
- ONE CLICK Judicial Review – Honouring pledges
- Daily Mail: The wake-you-up pill (thyroid, Dr Gordon Skinner GMC case)
- ONE CLICK ANNOUNCEMENT – NICE JUDICIAL REVIEW
- Times: Claimants ‘should work for benefits’, say Tories
- Times: New laws to govern alternative medicine
- Justice for Families report December 2007, John Hemming
- More potential dangers of the UK NICE Guideline on “CFS/ME”
- Letters, Daily Mail, 27 December
- MP calls for review of use of medical expert evidence.
- ONE CLICK comments on Daily Mail Camelford article
- Southampton ME/CFS conference – February 12
- Royal Society of Medicine conference – April 28
- House of Commons: Written answers: November 2007
- Response to: £40,000 grant from “Children in Need” for Child Support officer
- APPG on ME: 22 January meeting, confirmation of time, room
- Times2: Article and interview with David Southall, 11 December 2007
- Data security: It just gets worse and worse…
- Sunday Times: Haunted by the nightmare of the secret family courts
- EDM: ContactPoint
- Paediatricians Challenged to Debate? John Hemming, MP
- RiME: Norfolk Services: Oasis or Mirage? December 2007
- NICE Consultation: Have your say on the social values that underpin NICE guidance
- John Hemming, MP: Justice for Families Campaign report 17
- News of next APPG on ME meeting and 2008 Parliamentary Term dates
- Neglect of Severe ME sufferers in Norfolk and Suffolk
- East Anglia ME Patient’s Partnership and The 25% ME Group press release
- MEA Briefing paper and next APPG meeting
- Comments to Daily Mail article of 15 November which remain unpublished
- One Click Writes To Paul Dacre, Daily Mail Editor – Judicial Review
- One Click NICE Judicial Review – Campaign Update 2
- MEA response to Dr Mark Porter, Evening Standard
- AfME Statement: Legal action against NICE
- ONE CLICK launches NICE High Court Action Today
- 25 million exposed to risk of ID fraud
- Benefits and Work November newsletter available now
- Pulse: NICE condemned over chronic fatigue syndrome
- Telegraph letters: Prof Peter Littlejohns, NICE
- MEA writes to the Daily Telegraph about NICE
- The Scotsman: Vaccination article: Helen Mcdade, 16 November
- Telegraph: Doctor’s Diary, James le Fanu, 19 November
- ME Association: Summary of Board of Trustees Meeting: 13 November 2007
- BBC Breakfast News: 17 November: NICE Guidelines on YouTube
- BPS Slams NICE Guidelines – One Click NICE Judicial Review
- Latest news on ONE CLICK: 17 November
- House of Commons Adjournment Debate on ME
- NICE on BBC Breakfast News, Saturday 17 November
- Commenting on media coverage of Judicial Review campaign
- The media’s use of the term “Yuppie Flu”
- Judicial Review story in the Daily Mail
- Judicial review story in Telegraph
- London Evening Standard Breaks Judicial Review Story
- BBC closes further ME threads on its message boards this afternoon
- Reference to AfME/MRC Summit on today’s You and Yours
- Podcasts for You and Yours ME strand which finished, today
- Today (Monday) final part of You and Yours ME strand: Research funding
- Times: The fight goes on for veterans broken by the horrors of war
- The UK’s secret Family Courts by Jack Frost, Irish Family Press
- House of Commons Adjournment Debate update
- Monday’s You and Yours: Update from Dr Charles Shepherd
- ONE CLICK Legal Appeal: Judicial Review – Major Breaking News
- Re: A victory: Greg Crowhurst, via Co-Cure, 7 November 2007
- A victory: Response from Greg Crowhurst to UNUM item on BBC News at 10
- You and Yours: Transcripts for Friday, Monday and Wednesday’s broadcasts
- RiME: Concerns re Minutes of APPG on ME, July 2007
- Justice for Families – Campaign Report 17, John Hemming, MP
- Update from MEA on Radio 4 You and Yours and Case Notes
- Dr Charles Shepherd comments on Wednesday’s You and Yours
- You and Yours ME message boards
- BBC news investigation into UNUM
- Regarding “Whiter than white?” : Response from Prof Peter Denton White
- ONE CLICK NICE CFS / ME Legal Appeal: Wednesday update
- Whiter than white? Margaret Williams, 6 November 2007
- ONE CLICK: NICE CFS / ME Legal Appeal: Tuesday update
- ONE CLICK NICE CFS / ME Legal Appeal: Important update
- Tuesday’s You and Yours ME strand
- BBC Radio Message board for ME on “You and Yours”
- LEGAL APPEAL – JUDICIAL REVIEW: CFS/ME NICE GUIDELINES Update
- ME series on BBC Radio 4 started Friday, November 2
- You and Yours: Listen again and Podcast
- John Greensmith update and comment: You and Yours ME strand
- GMC issues new guidance on care of under 18s
- LEGAL APPEAL – JUDICIAL REVIEW: Friday update
- ME series on BBC Radio 4 starts today, Friday, November 2
- CFS/ME NICE GUIDELINES JUDICIAL REVIEW: Update 4
- YouTube: About M.E. / Chronic Fatigue Syndrome from Sleepydust
- MEA Media Release: Your and Yours, ME / CFS strand
- CFS/ME NICE GUIDELINES JUDICIAL REVIEW: Update 3
- Inquiry into NICE: final hearing, 8 November 2007
- CFS/ME NICE GUIDELINES JUDICIAL REVIEW: Update 2
- Major ME broadcasting event on BBC Radio (scheduled for early November)
- NICE: GIGA (Garbage-In, Garbage-out)?: Margaret Williams, 24 October 2007
- Two Australian bloggers
- House of Commons: Written answers: 19 October 2007
- Questions concerning closure of The MEACH Trust
- CFS/ME NICE GUIDELINES JUDICIAL REVIEW: Update 1
- Unum Chief Medical Officer’s Annual Report 2006
- A Short Summary of the Psychiatric Paradigm of ME/CFS: Angela Kennedy
- Unum Chief Medical Officer’s Annual Report 2007
- MRC and Freedom of Information: 2
- UNUM UNITED? Eileen Marshall, Margaret Williams, October 2007
- Summaries of James Lind Alliance research meetings, 2007 and proposed agenda for 2008
- LEGAL APPEAL – JUDICIAL REVIEW: CFS/ME NICE GUIDELINES
- AfME Summit Report now available
- The AfME ME Observatory and another list they do not want us to see
- The AfME Research Summit and the list they did not want us to see
- BBC: More funds for talking therapies
- Times: Medical funding increased in drive to find new treatments
- NICE Cuts One Click Document
- Ciaran Farrell invites you to become a critical friend of the AfME National ME Observatory
- A tenth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- RiME: Newsletter No.9 now available
- Legal Countdown to Judicial Review CFS / ME NICE Guidelines
- Guardian: Controversial company hired to get disabled people off benefit
- Network ME: Press release: CFS / ME – Not Just a White Illness
- National ME Observatory: So, who is on the Steering Group?
- More thoughts on the Gibson Report from Angela Kennedy – revisited
- eBMJ rejects Simon Wessely’s response to NICE Editorial
- A ninth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- Sunday Times, In Gear: Letter from Dr John Greensmith
- Pulse: Stomach virus strongly linked to CFS, 20 September 2007
- Coercion as Cure? Eileen Marshall, Margaret Williams, 21 September 2007
- MRC and Freedom of Information: 1
- Blogging doctors with ME: 1
- RiME: Now back online
- YouTube: Not so NICE from GBCOne
- Round up of four recent articles in the Times and Sunday Times
- ‘ME guideline is unworkable’ Response to NICE guideline on ME / CFS in BMJ paper edition
- Invest in ME declares NICE CFS / ME guidelines “unfit for purpose”
- Chronic fatigue syndrome is associated with chronic enterovirus infection of the stomach: Chia K S, Chia A Y
- Two articles in The Times: Children and ME / CFS; CBT and CFS
- NICE related blogs and blog entries
- An eighth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- NICE guidance to be discussed at MEA annual medical meeting September 15
- New study, Journal of Clinical Pathology: Stomach virus ‘may trigger ME’
- Statement from The One Click Group concerning CFS / ME NICE Guidelines
- A seventh batch of responses to NICE CFS / ME Editorial and Review: BMJ
- Pulse: NICE guideline article: Row over therapy call for CFS
- NICE CFS / ME Guideline: Statement by the ME Association, 07 September 2007
- A Selection of points the Barts CF Service made during the NICE Guidelines for CFS / ME: Tom Kindlon
- A sixth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- ME Association: Summary of Board of Trustees Meeting: 30 August 2007
- A fifth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- A fourth batch of responses to NICE CFS / ME Editorial and Review: BMJ
- NICE CFS / ME guideline considered “not fit for purpose” by ME Association
- Sunday Times: Coping with ME article, “In Gear” section, 2 Sept 07
- A third batch of responses to NICE CFS / ME Editorial and Review: BMJ
- A second batch of responses to NICE CFS / ME Editorial and Review: BMJ
- MEA response to Editorial and Review of NICE CFS / ME guideline in the BMJ
- BMJ Editorial: Chronic fatigue syndrome or myalgic encephalomyelitis NICE guidelines
- Comments on the NICE Guideline on “CFS/ME”: Margaret Williams
- NICE CFS/ME guideline: Media coverage round-up One
- Brian Ashworth: The Orchard Centre, Bilston, West Midlands
- NICE CFS/ME guideline: AYME press release
- BRAME: Personal Response from Tanya Harrison to NICE guideline on CFS/ME
- AfME statement: NICE CFS/ME guideline amended
- NICE CFS/ME guideline Stakeholder Comments and GDC responses
- NICE guideline on CFS/ME published
- NICE CFS/ME guideline: Press Release, 22 August 2007
- Occupational Health (NHS Plus): Statement from AfME: 17 August 2007
- Occupational Health discussions (NHS Plus): MEA statement: 20 August 2007
- Wessely, Woodstock and Warfare? by Margaret Williams
- Be a trouble maker by Greg Crowhurst
- Children in Need grant for Dorset ME Support Group
- RiME: Summary of APPG on ME meeting: 12 July 2007
- Response from John Sayer to Minutes, APPG on ME meeting: 12 July 2007
- Response from editor, You and Yours: ME: 30 July 2007
- Action for ME (AfME): Statement: NHS Collaborative Conference
- Contact details: BBC Radio 4 Feedback programme
- APPG on ME: Minutes of 12 July 07 meeting
- Radio 4: Leo, Rusty and ME: You and Yours follow-up, July 2007
- House of Commons: Written answers: 19 July 2007
- New DWP medical guidance for Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)
- 25% ME Group response to DWP guideline
- AfME rejects DWP guideline whilst endorsing Collaborative Conference
- DWP medical guideline for DLA decision makers published 20 July 2007
- Comment from Angela Kennedy on proposed Parliamentary Debate
- Proposal for a Parliamentary Debate on current urgent problems for ME patients
- APPG on ME: Summary of meeting and AGM: 12 July 2007
- AfME News: APPG sets the agenda for next Parliamentary session
- New Health Minister for ME
- Statement from Angela Kennedy to Chair of APPG on ME
- MEA response to DWP Medical Guidance: Version 10
- DWP Medical Guidance: Version 10 (May 2007)
- Letters to RiME, July 2007: NHS Clinics: More patients’ concerns
- APPG on ME: Agenda for meeting and AGM 12 July 2007
- Collaborative Conference on CFS/ME: 4-5 October 2007
- Written answers: 29 June 2007
- Research Worker: Institute of Psychiatry Biomedical Research Centre
- Written answers: 3 July 2007
- ME Association annual medical meeting – September 15
- Letters to RiME, June 07: NHS Clinics: ME Patients’ Concerns Unaddressed
- NICE Evidence Sessions
- NICE Guideline on ME/CFS – Publication date and other information
- The GSRME, the APPG on ME and the EDM
- APPG on ME: Minutes of 17 May 07 meeting
- Dissolution meeting of the GSRME
- Statement from the GSRME [The Gibson Group]
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