XMRV Retrovirus: Round up 21: CFSAC videocasts, Testing, Media, CDC Chatter Blog

XMRV Retrovirus   Whittemore Peterson   Institute Science   Mikovits   Peterson   Chronic Fatigue Syndrome

XMRV Retrovirus: Round up 21: CFSAC videocasts, Testing, Media and CDC Chatter Blog

WordPress Shortlink: http://wp.me/p5foE-2iU

Videocasts of CFSAC meeting 29-30 October 2008

Around 12 hours of video of the two day CFSAC meeting is now available at:

http://videocast.nih.gov/PastEvents.asp

Chronic Fatigue Syndrome Advisory Committee Meeting (CFSAC) – Day 1
Thursday, October 29, 2009
HHS Office on Women’s Health (OWH)
Total Running Time: 06:43:49

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http://videocast.nih.gov/PastEvents.asp

Chronic Fatigue Syndrome Advisory Committee Meeting (CFSAC) – Day 2
Friday, October 30, 2009
HHS Office on Women’s Health (OWH)
Total Running Time: 05:15:09

Presentation

Dr David Bell’s PowerPoint slides: http://www.hhs.gov/advcomcfs/meetings/agendas/bell_factitious_102909.ppt

Public Testimony
Thursday, October 29, 2009

List of those given testimony plus some PDFs

Friday, October 30, 2009

List of those given testimony plus some PDFs

Written Testimony Received Prior to the Meeting Date

26 PDFs

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YouTubes of CFSAC meeting

Clips of Dr Dan Peterson’s presentation and Annette Whittemore: http://www.youtube.com/user/Khalyal

Also on this channel plus some patient testimonies: http://www.youtube.com/user/luminescentfeeling

Dr Dan Peterson presentation in 11 parts here: http://www.youtube.com/user/luminescentfeeling#p/u/11/80yKflt0tcA

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Media

Reno Gazette Journal  | 3 November 2009

http://www.rgj.com/article/20091103/NEWS/911030349/1321/news

Hundreds request test for retrovirus
BY LENITA POWERS • lpowers@rgj.com

Overwhelmed by requests from people seeking to have their blood tested for a new retrovirus discovered by researchers at the Whittemore-Peterson Institute for Neuro-Immune Disease in Reno, the institute has arranged for a local laboratory to do the testing.

The flood of requests for blood tests began after the Whittemore-Peterson Institute published a research study in the Oct. 8 online journal Science that showed the prevalence of the retrovirus XMRV in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

Viral Immune Pathology Diagnostics (VIP Dx), a small state-certified laboratory in Reno, temporarily will provide testing for the retrovirus XMRV for physicians who request it for their patients at a cost ranging from $400 to $650.

Institute officials said the hope to enter an agreement with a larger laboratory that could handle the demand nationwide, Annette Whittemore, the institute’s founder and president, said Monday…

Read full article here

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ProHealth  |  3 November 2009

http://www.prohealth.com/library/showarticle.cfm?libid=14982

Dr. Bell’s November Newsletter – Lyndonville Research Group ‘Back in Business’ with Presentations Planned

Issued in the wee hours of November 3, 2009, Dr. David Bell’s latest free Lyndonville News e-newsletter (http://www.davidsbell.com/index.htm#Latest  announces that the revived Lyndonville ME/CFS Research Group has already initiated four projects, the first being a presentation Dr. Bell will give Sunday, Dec 6 in Batavia, New York “Between Rochester and Buffalo,” fee $10 to cover costs…

Read full article here

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University of Florida  College of Medicine  |  3 November 2009

http://news.medinfo.ufl.edu/articles/miscellaneous/event/chronic-fatigue-syndrome-cancer-linked-to-new-virus/

By Czerne Reid

A newly identified virus has been found to be linked to chronic fatigue syndrome and might also provide clues about how to prevent prostate cancer, according to a report this month in the journal Science. Called XMRV, the virus is transmitted in blood and body fluids and might be a significant public health threat.

Judy Mikovits, Ph.D., senior author of the paper, described the research during grand rounds at the University of Florida College of Medicine Thursday, Oct. 20. She was a guest of the division of hematology/oncology…

Read full article here

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Reuters Hemispherx Press Release

http://www.reuters.com/article/pressRelease/idUS124102+02-Nov-2009+GNW20091102

Hemispherx Biopharma Updates Chronic Fatigue Syndrome (CFS) Treatment and Commercial…

Mon Nov 2, 2009 8:46am EST

Hemispherx Biopharma Updates Chronic Fatigue Syndrome (CFS) Treatment and Commercial Application Programs

PHILADELPHIA, Nov. 2, 2009 (GLOBE NEWSWIRE) — Hemispherx Biopharma, Inc. (NYSE Amex:HEB) (the “Company”), announced a two-prong CFS clinical mission for November and December 2009.

The Company plans to widen its ongoing clinical programs in CFS by accelerating collaborations with a consortium of researchers who have just discovered a retroviral link to Chronic Fatigue Syndrome (please see October 8, 2009, online issue of Science). A clinically validated test to detect retrovirus antibodies in patients plasma is also currently under development (please see US National Institutes of Health at:
http://www.cancer.gov/newscenter/pressreleases/CFSxmrv ).

With the consortium of researchers at the Whittemore Peterson Institute, the Company is also now evaluating the defect in immunosurveillance in specific subsets of CFS patients in a clinical study entitled “Therapeutic Activation of NK lymphocytes to Alleviate Chronic Fatigue Syndrome.” These immune defects may be due to the previously undetected retrovirus…

Read full Press Release here

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About.com  Fibromyalgia  and CFS Blog  | November 3, 2009

http://chronicfatigue.about.com/b/2009/11/03/chronic-fatigue-syndrome-dr-lerner-on-ampligen-xmrv.htm

Chronic Fatigue Syndrome: Dr. Lerner on Ampligen, XMRV

By Adrienne Dellwo, About.com Guide to Fibromyalgia & CFS

Dr. A Martin Lerner: Thoughts on XMRV (Updated), Ampligen

In my recent conversation with Dr. A. Martin Lerner, a former chronic fatigue syndrome sufferer who says he used his specialty in infectious diseases to find treatments for himself and others, I asked him about both the XMRV discovery (which was just days old at the time) and also about Ampligen, the proposed chronic fatigue syndrome drug currently awaiting FDA approval…

Read full article here

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Commentary

From Hillary Johnson, author of “Osler’s Web”:

Website: http://oslersweb.com/

Blog: http://oslersweb.com/blog.htm

2 October 2009 via Co-Cure

“I’ve posted a new blog, “CDC MYOCARDIAL INFARCTION,” which reveals agency staff anxiety over the likelihood of reprisals against the CDC for Bill Reeves’ two-decades con job.

http://www.oslersweb.com/blog.htm?post=643435

“The material comes from an internal CDC web site where anonymous posters chat about what worries them. Over the weekend, several people have sent me comments captured from this site before it was shut down on October 29th.”*

Stephen Ralph, of MEActionUK, also presents a comprehensive link to this site, at: http://www.meactionuk.org.uk/CDC_Chatter_Blog_-_Updated_021109.htm

Ed: Note: The site has not been shut down but access to this particular thread is no longer set for public access.

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For initial Whittemore Peterson Press Release, NIH (National Institutes of Health) News Release, Science paper go here: http://wp.me/p5foE-272

Click here for all previous XMRV Round ups and postings in reverse date order: https://meagenda.wordpress.com/category/xmrv/

The Definition Petition

Petition webpage: http://CFSdefinitionpetition.notlong.com
i.e. http://www.ipetitions.com/petition/empirical_defn_and_CFS_research

If you haven’t already signed it – sign the CFS Definition Petition today at: http://CFSdefinitionpetition.notlong.com

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