Round up of Scottish ME and CFS issues

Round up of Scottish ME and CFS  issues:

http://www.festivalofpolitics.org.uk/2009day3.htm 

Past Present & Future – The Developing Role of the Cross Party Group on ME In Engaging with Health Service Provision

Thursday 20 August 2009

14.30 (15.30) Committee Room 3 FREE*

What have been the experiences of the Cross Party Group on ME since its inception, and how have the strategies it has adopted related to policies for health service delivery? One of a number of Cross Party Groups addressing health issues, the Cross Party Group on ME has often faced difficulty in achieving its aim of representing the needs of people with ME to decision makers. Are these circumstances unusual, or do they signify a limit to the effectiveness of Cross Party Groups which may have implications in the future?
In association with the Cross Party Group on ME.

To Book Past Present & Future – The Developing Role of the Cross Party Group on ME In Engaging with Health Service Provision online go to: http://www.hubtickets.co.uk/auto_choose_ga.asp?area=1186

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http://www.afme.org.uk/news.asp?newsid=371

Cross Party Group
11 September 2008

The next meeting of the Cross Party Group on M.E. will take place in the Scottish Parliament on Wednesday 17 September at 1pm in Committee Room 3.

The meeting will incorporate the AGM and election of office bearers and include updates on the Scottish Good Practice Statement for GPs and the Scottish Needs Assessment.

The agenda will also include items on Welfare Benefits, the Welfare Reform Green Paper and Telemedicine.

Anyone wishing to attend who is not an MSP will require a pass should in the first instance contact Patricia Chambers, tel: 01355 806223 or e-mail: Patricia.Chambers@scottish.parliament.uk  

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The Scottish Government published its national action plan “Improving Health and Wellbeing of People with Long Term Conditions in Scotland” on 16 June 2009

Site: http://www.sehd.scot.nhs.uk/details.asp?PublicationID=2980

PDF: http://www.sehd.scot.nhs.uk/mels/CEL2009_23.pdf

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Action for M.E. News Launch of new Scottish GP guide
15 May 2009

http://www.afme.org.uk/news.asp?newsid=544

Two healthcare initiatives for people with M.E. were press launched in the Scottish Parliament yesterday, 14 May 2009.

The first was a Scottish Good Practice Statement for GPs on the diagnosis and management of ME-CFS and the other, a national consultation on a Needs Assessment of healthcare services for people living with the illness.

Both initiatives are supported by the Scottish Government Health Directorates.

The Good Practice Statement for GPs has been produced by Dr Purdie, NHS Dumfries & Galloway, with administrative support from Action for M.E.

The needs assessment has been undertaken by the Scottish Public Health Network, which commissioned Action for M.E. to organise focus groups to help inform its thinking in the early stages.

The launch was hosted by Andy Kerr MSP, Convenor of the Cross Party Group on M.E. and attended by the Presiding Officer of the Scottish Parliament, Alex Fergusson MSP, together with Kenny MacAskill MSP, Elaine Murray MSP and Robin Harper MSP, representatives from NHS 24, Health Boards, Action for M.E., the ME Association, local M.E. support groups, people with M.E. and their carers.

Andy Kerr MSP welcomed the launch of both documents and thanked everyone who contributed, before welcoming the speakers: Will Scott, Head of the Long Term Conditions arm of the Scottish Government Health Directorates, Dr Purdie, as lead author on the Good Practice Statement and Phil Mackie, Scottish Public Health Network (ScotPHN), as lead author on the Needs Assessment.

The Good Practice Statement has benefited from substantial input from people with M.E. The proof copy produced for the launch will now be finalised for distribution to GPs and other healthcare professionals and it will shortly be made available online and in hard copy to people with M.E. and others.

The guide will also be the subject of a one-day training conference for GPs and other medical professionals and academics on Wednesday 9 September.

The report of the ScotPHN Needs Assessment is now available for comment as part of a national consultation taking place 14 May–1 September.

In a press release issued before the launch, Public Health Minister Shona Robison said:

“Both the Good Practice Statement for GPs and the needs assessment consultation are very important pieces of work. I welcome the contribution they will make to the care of people with ME and CFS here in Scotland – both conditions that are debilitating and distressing for those who live with them day by day.

“A great deal of work has been undertaken by many people to produce these, and both show great sensitivity towards the needs of people with M.E. Together, these two initiatives will help professionals support and manage M.E. and CFS and ultimately improve care.”

Ends

and

ME Association:

http://www.meassociation.org.uk/content/view/866/161/  

ME/CFS good practice guide launched for Scotland

A Scottish Good Practice Guide for GPs on the diagnosis and management of ME/CFS was launched at the Scottish Parliament on Thursday (May 14).

Andy Kerr MSP, convenor of the Cross Party Group on ME in the Scottish Parliament, welcomed visitors to the press launch – which also included the start of a national consultation on the first-ever needs assessment of healthcare services for people living with the illness.

In a press statement to coincide with the event, public health minister Shona Robison said:

“Both the Good Practice Statement for GPs and the needs assessment consultation are very important pieces of work. I welcome the contribution they will make to the care of people with ME and CFS here in Scotland – both conditions that are debilitating and distressing for those who live with them day by day.

“A great deal of work has been undertaken by many people to produce these, and both show great sensitivity towards the needs of people with M.E. Together, these two initiatives will help professionals support and manage ME and CFS and ultimately improve care.”

The Good Practice Guide has been produced by Dr Gregor Purdie, from Castle Douglas, Dumfries. It will be the subject of a one-day training conference for GPs and other healthcare professionals on Wednesday, September 9.

The needs assessment has been undertaken by the Scottish Public Health Network. Their report is available for comment as part of a national consultation taking place 14 May–1 September.

The needs assessment report and comments template will be available from 14 May at their website here:

http://www.healthscotland.com/resources/networks/scotphn/projects/CFSME.aspx

Andy Kerr said:

“ME/CFS affects over 20,000 people in Scotland but there has been a lack of information about the illness, how it should be diagnosed and what treatments and services are available.

“These two documents will go some way towards informing those in the medical profession and in our National Health Service on issues related to ME and thereby improving the treatment and care of people with ME.

“They represent the first steps in developing a coherent, consistent service throughout Scotland.”

Ends

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Health Care Needs Assessment of Services for People with ME-CFS

Final comments to be received by 1 September 2009. Further details on the site.
Finalisation of report – September 2009

Overview:

http://www.healthscotland.com/resources/networks/scotphn/projects/CFSME.aspx

Report:

http://www.healthscotland.com/documents/3402.aspx

Appendices:

http://www.healthscotland.com/documents/3403.aspx

HCNA – ME-CFS – Scrutiny 1 Patient scrutiny panel comments:

http://www.healthscotland.com/documents/3492.aspx

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