25% ME Group: Statement on the death of Lynn Gilderdale

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Image Freefoto.com  [Previous postings on ME agenda for media coverage of the death of Lynn Gilderdale are identified by the image above.]

25% ME Group

Statement: Tragic Death of Lynn Gilderdale

The 25% ME Group – support group for severe ME sufferers, would like to offer our sincere condolences to all the family of Lynn Gilderdale.

She was an extremely ill person, who suffered many complications due to having Myalgic Encephalomyelitis (ME).

Lynn had been a member of our national charity for many years and in fact volunteered to head up our poster campaign several years ago, which contributed greatly to raising awareness of the illness.

It is a fact of life that many continue to suffer with this devastating disease often in silence and completely alone and isolated. Certain areas of the medical profession have been responsible in the past for belittling the condition, but it is a reality that neurological ME, causes a great deal of pain and suffering for the patient, some of whom die from the disease as was the case with Sophia Mirza a few years ago. We also had a member who died from complications of ME, earlier this year.

I know personally that Lynn wanted to make a difference and to raise awareness of ME and we thank her, for what she did.

Our love, support and prayers will continue for Lynn’s mother, Kay, and all the family at this tragic and deeply sad time.

Yours sincerely
Simon Lawrence
Chairman
25% ME Group

Letter to The Editor: published by the Times, print edition 11 December,  from Hayley Klinger on behalf of the 25% ME Group

Sir,

Lynn Gilderdale was a valued member of the 25% ME Group and we are all heartbroken by her death, especially as we are fully aware of her mother’s total devotion to her. We represent ME sufferers who are totally bedridden, some of whom are tube fed and dependent on carers and others who are lucky enough to be able to leave home in a wheelchair occasionally; two other members of our group have recently died with ME on their death certificates.

Despite thousands of medical research papers showing immunological, neurological, endocrine, cardiac and gene expression involvement in ME, it is thought of as an illness of fatigue and even called Chronic Fatigue Syndrome by the media and some doctors. Our members in reality have to deal every day with truly debilitating, frightening and overwhelming symptoms, and they also have to cope with the loss of anything resembling normal life. Lack of knowledge from the medical profession and lack of understanding from a society which has been told for years that ME is merely fatigue can make this awful situation truly intolerable. Lynn’s mother made the point that ME is greatly misunderstood and Lynn suffered the stigma as well as bravely fighting such severe illness.

ME sufferers need to have their suffering recognised, and biomedical research funded if more deaths are to be avoided.

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Who are we?

The 25% ME Group is a unique nationwide charitable organisation managed entirely by volunteers (most of whom are severely affected by ME) and was set up to offer support services to those severely affected by ME (Myalgic Encephalomyelitis), and their carers. The group is also supported by two part-time admin staff. We provide a wide range of services to people affected by severe ME many of whom are virtually housebound and/or bedbound. (Please refer to the About Us section for more service details and how to join the group).

http://www.25megroup.org/about%20Us/about%20us.htm

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