This information is available on THE ONE CLICK GROUP website
Patients Declare UK New Labour Party Is Finished
A Petition to Gordon Brown (Labour, Kirkcaldy and Cowdenbeath), the UK Prime Minster was recently launched to underscore the plight of patients suffering under the ME/CFS label in the UK. At the close of this Petition, the New Labour government responded.
Instead of accurately and responsibly answering the concerns of ME/CFS labelled patients – the electorate – New Labour very stupidly decided to parrot the scientifically fraudulent dogma produced on this illness by the psychiatric lobby, precisely the small cohort of psychiatrists that has done these patients so much damage.
It is entirely fascinating to see that politicians have still not yet grasped the growing conjoined lobby power of the internet and precisely what this modern communication engine is now capable of doing to their prospects.
Patient Power Lobby
In October 2007, the One Click health advocacy pressure group launched a legal appeal to raise funds to challenge the appalling CFS/ME NICE Guidelines in the High Court.
We raised the necessary money in matter of weeks using the internet to drive our campaign. Although obviously an extremely good result, the entire genesis of this campaign was purposefully designed to do far more than just fundraising and it has.
From the multitudinous patients who have supported the One Click campaign, we have now developed a political lobby fighting force that has the conjoined power to visibly and vocally challenge the government at the next election.
New Labour (and all the other political parties in Britain for that matter) would do well to remember that there are 240,000 ME/CFS labelled patients in Britain, 200,000 of them adults with the vote. If we were to elect to conjoin with the anti-vaccine lobby with 1 child in every 100 labelled with autism, the electoral movement generated would run into the many millions.
Every single UK Member of Parliament has been placed on to the One Click News Alerts distribution list to ensure that these politicians are able to keep up to date with the medical and political information that matters so much to their constituents.
Subscription to the news published by One Click is entirely elective. To date, out of the over 600 Members of Parliament subscribed to One Click together with thousands of Opinion Formers around the world, only twelve MPs have resigned, most of them belonging to New Labour. Our Administrators are keeping an entirely accurate record of events that will be published close to the next UK General Election.
As so clearly indicated in the Health and Social Campaigners Network Report published in February 2008, as the types of advocacy organisations proliferate they militate patients who will become more pervasive and influential whilst they ride and control the winds of change.
No one will ever forget that it was the New Labour government that illegally took us into the oil war in Iraq that hundreds of thousands of British citizens protested against, with so many of differing nationalities now needlessly dead and disabled for life.
Nobody will ever forget the New Labour ‘nanny state’ losing the confidential data of hundreds of thousands of voters, nor the fact that the British are more spied upon by government than any other country in the world.
The sleaze and incompetence of New Labour with its financial links with the pharmaceutical industry, as so clearly evidenced by its sinister government lobby groups such as Sense About Science and the Science Media Centre, are political killers.
The foregoing are but a few examples of just how the voters feel about this government.
Gordon Brown and his New Labour government have made a fundamental mistake in their published response to the ME/CFS Petition that has served to radicalise patients.
The internet is still in its lobby power nascent infancy, with its enormous potential as yet unrealised by politicians, many of whom are so coddled by their staff that they struggle to work a computer. Come the next General Election in Britain, watch this space.
Go fall on your sword Gordon Brown of UK New Labour, before the conjoined patient power of the electorate rams it home for you. The electoral prospects for the New Labour party in Britain have been spectacularly diminished today in more ways than one.
The One Click Group
27 February 2008
“We the undersigned petition the Prime Minister to get the Health Service and medical profession to accept the WHO classification of ME/CFS as an organic neurological disorder and not as a psychosocial syndrome. The latest DWP Guidelines and PACE are still directing the Health Service to treat ME sufferers with GET and CBT (a tool used for mental illnesses) despite the mounting evidence from a vast amount of research proving that ME is an organic not a psychosomatic disease and that the treatments forced onto those affected do in fact cause more harm than good and can worsen the condition of patients. Money should instead be invested in research into the physiological aetiology of ME/CFS and its treatment. Patients should not be forced into becoming psychiatric cases or lose their benefits.
The New Labour Government’s Response
There is no established cause of chronic fatigue syndrome/myalgic encephalopathy (CFS/ME). A number of different potential aetiologies including neurological, endocrine, immunological, genetic, psychiatric and infectious have been investigated, but the diverse nature of the symptoms can not yet be fully explained. The World Health Organization classifies CFS/ME as a neurological illness, but we recognise that many others working in the field of CFS/ME believe that until research further identifies its aetiology and pathogenesis, there is a risk of restricting research into the causes, mechanisms and future treatments for CFS/ME. What is important to recognise that CFS/ME is a genuine and disabling illness and health professionals must recognise it as such.
As will all serious illnesses, it is important that patients, their families and the healthcare professionals looking after them have the best scientific information available and the PACE trial has been designed to help them decide for themselves what treatment is likely to be best from them. There is currently very little information about the relative benefits of cognitive behaviour therapy (CBT) and graded exercise treatment and a scientific trial is the only way to find out which is the most effective approach.
The aim behind CBT is to support a sustainable improvement in functioning and adaption to illness, via gradual steps that are mutually agreed and regularly reviewed by patient and clinician. Applied appropriately, CBT can help the patient cope confidently with their illness and help them adjust to some of the consequences of being unwell and to feel more in control of their illness. In common with other illnesses such as cancer where it has been successfully used, its use does not imply that the cause of the illness is psychological.
As with any treatment, an explanation of the benefits and possible harmful effects of CBT should always be provided before decisions are made to offer and accept the treatment. It is important that health professionals recognise that people can vary in response to the treatments available and that it is appropriate to review therapy if symptoms appear to worsen as a result.
The Medical Research Council’s support for the PACE trial does not mean that money is not available for biomedical research and the Council remains committed to funding scientific research in all aspects of CFS/ME. Nevertheless it is important to maintain high standards in funding decisions and the MRC maintains a rigorous a decision making process, only funding research that is likely to make a significant contribution to knowledge and is a good use of tax payers’ money. The decision to reject proposals is taken on the grounds of scientific quality and whether the research proposed would be likely to inform the knowledge base.
Gordon Brown, New Labour Prime Minister