JR Media coverage: BBC: ME pair appeal ‘unfair NHS rules’

JR Media Coverage

Media coverage of the Judicial Review of the NICE Guideline for CFS/ME which begins in the Royal Courts of Justice, today, at 10.30am.  

The JR had been picked up by the BBC.

Can you or a carer, your family or friends join the gathering outside the Royal Courts of Justice, if only for an hour or two, tomorrow, or attend all or part of tomorrow’s hearing, space permitting? 

Additional reporting will be added to those below.


FT Adviser | 12 February | Sharon Flaherty

Insurers under fire over treatment of ME sufferers

Magazine: FTAdviser

Insurers are set to come under fire at a High Court case today (12 February) over their treatment of myalgic encephalomyelitis (ME) and chronic fatigue syndrome suffers, who are often unsuccessful in claiming on their insurance policies.

Last year FTAdviser.com revealed that an independent financial adviser had his permanent health insurance payments stopped by Norwich Union, because of the difficulty in diagnosing his condition of chronic fatigue syndrome. (See article previous here )

In the last 18 months, a dispute over the National Institute of Clinical Excellence (NICE) guidance on the condition has arisen, in part, because it emphasises that ME and chronic fatigue syndrome is a psychiatric condition rather than a physical one – something the wider ME community denies…

Read full report here


The Herald | 12 February | Phil Miller

Two ME sufferers challenge ‘perverse’ guidance given to doctors  


EDP24 | 11 February 2009 | Sarah Brealey


Norwich man’s ME fight goes to High Court

A Norwich man’s landmark battle for better medical treatment started in the High Court today.

Kevin Short, 47, a graduate and former engineer, is bringing the case with Douglas Fraser, a former professional concert pianist from London. They are applying for a judicial review of the guidelines for treatment of myalgic encephalomyelitis, or ME. Mr Short has had ME since the 1980s and has problems with mobility…

Read full report here


Fenland Citizen | 11 February 2009


‘Restricted me treatments’ challenged in high court

 Two ME sufferers, including one from Norfolk, have launched a High Court battle over the “perverse and irrational” guidance they say has been issued to doctors for the treatment of their condition…

Read full report here


It’s understood that an interview has been recorded for Radio Solent – no links yet.


Shields Gazette | 1o February 2008 |Angela Reed Chief reporter


ME sufferers await landmark judgement

SOUTH Tyneside sufferers of a debilitating condition hope a legal challenge will lead to the re-writing of guidance on their treatment.

Medical guidelines on the diagnosis and management of myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are being challenged in a judicial review at the High Court, in a case due to start today…

Read full report here


BBC | 11 February 2009


ME pair appeal ‘unfair NHS rules’

“There is little evidence that what has been recommended actually works”  Jamie Beagent, patients’ solicitor

Two ME patients are due to launch a High Court appeal against what they say is an “unfair and irrational” approach by the NHS to their condition…

Read full report here


The Homecare industry Information Service | 10 February 208


Courts challenge for M.E

Medical guidelines on the diagnosis and management of M.E. and chronic fatigue syndrome will be challenged in a judicial review at the Royal Courts of Justice.

The case against the National Institute for Health and Clinical Excellence (NICE) is generating considerable interest among the 250,000 people in the UK who have M.E., as some patients hope the legal proceedings will lead to the withdrawal of the guideline.

However, Action for M.E., the country’s biggest M.E. charity, supports the guideline…

Read full report here 


Medical News Today | 9 February 2008


ME Association Fully Supports Legal Challenge To The NICE Guideline On ME/CFS, UK

The ME Association will be fully supporting the two people with ME – Douglas Fraser and Kevin Short – who have succeeded in achieving a Judicial Review into the 2007 NICE Guideline on ME/CFS.

The Judicial Review, which could result in the NICE guideline being withdrawn, is taking place at the Royal Courts of Justice in The Strand, London on 11 and 12 February…

Read full report here