RSM “Medicine and Me” Events

RSM “Medicine and Me” Events

In the standard letter being sent out by Mr Ian Balmer, CE of the Royal Society of Medicine

[see posting: https://meagenda.wordpress.com/2008/05/14/letter-from-ian-balmer-ce-rsm/]

Mr Balmer writes:

“In order to redress the issue of patient involvement, the RSM has decided [to] introduce a ‘Medicine and Me’ conference on the subject of CFS/ME.

“This will be part of a series of conferences aimed at a wider audience, the planning of which will include patients and the format of which allows patients to speak first, and experts to respond to the issues raised. Typically the audiences for these conferences will be comprised of 70% patients and families. This particular series has proved extremely successful in allowing patients to share their experiences, focus on issues of greatest important to them and allow true dialogue between patients and acknowledged experts. This conference will be held in the early part of the 2008/09 academic year.”

Given the controversy over the RSM CFS Conference, it will be interesting to see which “experts”, clinicians and researchers, the RSM’s conference planners select to participate in this “Medicine and Me” “CFS/ME” meeting.

Past and future RSM “Medicine and Me” meetings appear to be arranged in association with a patient charity or organisation.

In the preface to his summary of Professor Peter D White’s presentation at the RSM Conference on 28 April, Dr Charles Shepherd, ME Association mentioned having discussions with Dr John Scadding in relation to this proposed meeting for the ME patient community and that they had agreed to discuss this proposal in more detail at a later date.

Will the ME Association and Action for ME be vying for the role of “in association with” and does the patient organisation have any influence over which “experts”, clinicians and researchers are invited to participate in these events?

In order to give an idea of the structure of these “Medicine and Me” meetings I am giving links, below, to one past meeting and three forthcoming conferences: Medicine and Me: Eczema, Medicine and Me: Sleep Apnoea, Medicine and Me: Hepatitis C and Medicine and Me: Lupus.

The charge to patients and carers is currently £20 to £25.00.

I will post any updates on this planned Medicine and Me: CFS/ME meeting.

 

http://www.rsm.ac.uk/academ/c10-z.php

Medicine and Me: Eczema

Tuesday 11 September 2007

Educational aims & objectives:

‘Medicine and Me’ conferences, initiated and developed by the Royal Society of Medicine, are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.

‘Medicine and Me: Eczema’ is jointly organised by the Royal Society of Medicine and the National Eczema Society.

‘Medicine and Me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share their experiences, to hear about the latest research and to question the experts. Eight Medicine and Me meetings have been held to date, on a wide range of diseases; these have all proved to be popular with patients.

The programme for this meeting includes an initial review of recent research, then presentations from three patients, each followed by a response from an expert on eczema, who will discuss the issues raised by the patients, concerning treatment and research. The meeting will finish with an extended interactive discussion involving all the speakers and the audience.

Who should attend?

The audience at ‘Medicine and Me’ meetings typically comprises patients, their families, carers and advocates, representing about 70% of those present; and clinicians and researchers, representing not more than 30%. Clinicians will include doctors, specialist nurses and all other types of health professionals involved in the treatment and care of patients.

This meeting will be suitable for all those with eczema.

[Go to the link for Agenda, speakers and conference registration details]

~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.rsm.ac.uk/academ/apnoea.php

Medicine and Me: Sleep Apnoea

Saturday 10 May 2008

Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE organised by the Royal Society of Medicine in association with The Sleep Apnoea Trust

‘Medicine and Me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share their experiences, to hear about the latest research and to question the experts.

The programme for this meeting includes presentations from four people with sleep apnoea, addressing issues concerning diagnosis, treatment options and conditions associated with sleep apnoea. Each of these presentations will be followed by a response from an expert on sleep apnoea, who will discuss the issues raised.

The last part of the meeting will be an extended interactive panel discussion involving all the speakers and the audience.

[Go to the link for Agenda, speakers and conference registration details]

~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.rsm.ac.uk/academ/hepc.php

Medicine and Me: Hepatitis C

Thursday 22 May 2008

Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE organised by the Royal Society of Medicine and The Hepatitis C Trust

Patient attendance is supported by The Hepatitis C Trust

‘Medicine and Me’ conferences, initiated and developed by the Royal Society of Medicine, are specifically intended for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition. Medicine and Me conferences aim to provide a forum in which patients’ concerns about their illness are given top priority.

‘Medicine and Me: Hepatitis C’ is jointly organised by the Royal Society of Medicine and the Hepatitis C Trust. The programme includes presentations from three people affected by Hepatitis C, raising issues about the nature of the condition and its treatment, each followed by an expert response. The meeting will finish with an extended panel discussion which will involve the audience in an interactive discussion.

[Go to the link for Agenda, speakers and conference registration details]

~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.rsm.ac.uk/academ/e10-lupus.php

Medicine and Me: Lupus

Tuesday 24 June 2008

Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE organised by the Royal Society of Medicine in association with LUPUS UK

‘Medicine and Me’ conferences, initiated and developed by the Royal Society of Medicine, are specifically designed for patients. These meetings bring together patients, their families, carers, advocates, patient support groups, clinicians and researchers to discuss care and research issues in a particular condition.

‘Medicine and Me’ meetings aim to provide a forum in which patients’ concerns about their illness are given top priority. The meetings provide an opportunity for patients and their families to share their experiences, to hear about the latest research and to question the experts.

[Go to the link for Agenda, speakers and conference registration details]

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