In a statement released yesterday, AfME (Action for ME) states that it does not support the new DWP medical guideline for DLA decision makers and calls for the guideline’s withdrawal. AfME writes:
We reject the basic approach in which “evidence-based medicine” principles have been too narrowly applied in circumstances where so little research evidence is available. Too much weight has been given to a small number of unrepresentative Randomised Controlled Trials. The results of these trials have been extrapolated to make invalid claims about the effectiveness of Cognitive Behavioural Therapy and Graded Exercise Therapy. The experience of patients and experienced clinicians has been largely ignored.
What credence can members of AfME and the wider ME community give to statements such as these when just a week ago, details of the NHS Collaborative Conference on CFS/ME were released?
The programme for this conference has been developed by the National NHS Collaboration and the National Network for CFS/ME Therapists in collaboration with ME/CFS patient organisations AfME (Action for ME) and AYME (Association of Young People with ME). AfME’s and AYME’s logos appear on conference flyers and programme information.
Presenters include Vincent Deary (formerly King’s College London CFS Unit), Trudie Chalder (Professor of Cognitive Behavioural Psychotherapy, Department of Psychological Medicine, King’s College London and a colleague of Professor Simon Wessely) and Dr Mary Burgess (Chronic Fatigue Syndrome Research and Treatment Unit, KCL).
ME/CFS charity members and non charity members incensed by AfME’s endorsement of this conference should contact Sir Peter Spencer and demand that the new CEO of AfME account for his organisation’s involvement with this convention of CBT/GET proponents.
Details of the NHS Collaborative Conference can be read on ME Agenda here