Sunday Times: In Gear Letters section (in response to the “handy vibrating Massage Ball” article, Coping with ME, In Gear, 2 September 2007)
Well done, John!
Progress towards a cure for ME (myalgic encephalomyelitis) is being hampered and delayed because we are putting all our funding into trying to manage it (Coping with ME, In Gear, September 2) instead of trying to discover its physical cause and provide a definitive diagnostic test for disbelieving doctors.
This cart-before-the-horse approach has produced a multi-million-pound network of clinics offering two treatments, one of which, cognitive behaviour therapy (CBT) does no lasting good for people with ME, and the other, graded exercise treatment (GET), which does lasting, irreversible, harm for some ME sufferers.
Ignorance and desperation have also opened the door to a number of costly radical treatments that are unproven, rely on faith and only have the testimony of a biased sample of patients who claim success, many of whom go on to be therapists themselves in a money-making pyramid process.
Nothing will change for ME sufferers until the biomedical research is put first.
Dr John H Greensmith, Downend, Bristol