Countess of Mar group Forward-ME website

Today, AfME (Action for ME) publishes the Christmas 2008 issue of InterAction magazine.

On Page 9, AfME announces the URL for the website for this group that was instigated by the Countess of Mar.

From Page 9, InterAction 66 Christmas 2008  

Countess of Mar

The Countess of Mar, a long-time supporter of people with M.E., met representatives from Action for ME, BRAME, ME Association, ME Research UK, 25% Group, TYMES Trust and reMEmber on 8 October to identify areas of common ground. AYME and Invest in ME were invited but unable to attend. The Countess found that agreement exists on 80-90% of issues and concluded that there was therefore a case for creating a new forum for M.E. charities. When asked if she would lead such a group, she agreed to chair the next meeting.

The meeting was held on 18 November. It was decided to call the forum FORWARD ME and to adopt the aim of promoting effective joint working by M.E. organisations to maximise their impact on behalf of people with M.E. in the UK.

The website is . It will promulgate actions and decisions taken and details of specific joint activities.



Ed: RiME has not been invited to attend these meetings.

Meanwhile, Action for ME’s Sir Peter Spencer has yet to provide a response to the following:

sent to:

To: ME Alliance:  ;  ;  ;

Re: Current status of the ME Alliance

It was understood that the existing ME Alliance was anticipated to be reconvening earlier this year.
I should be pleased if you could clarify the following:

1] Is the ME Alliance still extant?

2] Who are the current members of the ME Alliance?

3] Does the ME Alliance currently have a convener and who is the convener?

4] When did the last meeting of the ME Alliance take place and which organisation reps were present at that meeting?

5] Has a date for a future meeting of the ME Alliance been set and when is the next meeting anticipated to be held?

6] Does the current ME Alliance have a constitution, mission statement or statement of objectives and if so where can these be accessed?

7] Does the ME Alliance intend to publish an agenda, minute, note or summary of any meetings it might hold in the future?

There has been much speculation amongst the ME community about whether the meetings being held by the Countess of Mar are a “new Alliance” or a “Reformed Alliance” which has replaced the “old Alliance”.

Given that very little information about the existing ME Alliance has been issued over the last couple of years since the departure from Action for ME of Chris Clark, and given the evident confusion about the current status of the ME Alliance it would be appropriate for a statement to be issued clarifying the situation and responses provided to the queries raised above.


These questions were first raised with AfME on

20 November 2008

I shall be writing again, this morning, to Sir Peter Spencer for a clarification.