MRC “CFS/ME” multi-disciplinary panel: FOI (2)

MRC “CFS/ME” multi-disciplinary panel: FOI (2)

In the Summary of the November meeting of the ME Association Board of Trustees, Dr Charles Shepherd writes:

Medical Research Council (MRC) Advisory Group on ME/CFS Research CS updated trustees on the current situation regarding this group, which is being set up by Professor Stephen Holgate. The MEA has been invited to give a presentation to the group at a meeting that has been provisionally arranged by the MRC for mid December.”

This is somewhat confusing, as there has already been an MRC panel with the title “MRC CFS/ME Research Advisory Group”. As far as I am aware, the MRC hasn’t publicly ascribed a name (or a working name) to the new panel which is to be chaired by Professor Stephen Holgate – the MRC tend to refer to it only as the “CFS/ME inter-disciplinary panel” or the “CFS/ME multi-disciplinary panel”.

Dr Shepherd says that the MEA has been invited to give a presentation “to the group”,  provisionally arranged for mid December and one assumes he refers to the Prof Holgate panel.

Perhaps it is the case that the MRC expects to have completed assembling the CFS/ME multi-disciplinary panel by mid December.

In order to establish the status of the MRC’s “CFS/ME multi-disciplinary panel” I have put in the following request under FOI Act, today:

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

MRC “CFS/ME” multi-disciplinary panel: FOI (2)

From: Suzy Chapman
To: foi@headoffice.mrc.ac.uk
Sent: Sunday, November 16, 2008 9:32 AM
Subject: Freedom of Information Request: CFS/ME multi-disciplinary panel

To: Freedom of Information Officer, Corporate Affairs Group, Medical Research Council, 20 Park Crescent, London W1B 1AL foi@headoffice.mrc.ac.uk

Freedom of Information Request: MRC CFS/ME multi-disciplinary panel

I should be pleased if you would issue an acknowledgement of receipt of this email.

On 25 April 2008, I requested certain information relating to the MRC’s announcement that a CFS/ME multi-disciplinary panel was in the process of being set up which was to be chaired by Professor Stephen Holgate and which would report directly to the MRC’s Strategy Board.

On 27 May 2008, I was advised by Ms Wendy Raymond, that the panel had not yet been appointed.

I now request the following information under FOI Act on 16 November 2008:

1] The names of all individuals appointed to date to the MRC CFS/ME multi-disciplinary panel, and their medical, or other, discipline.

I was advised by Ms Raymond on 27 May 2008 that “The terms of reference will be discussed at the first panel meeting (date not yet arranged). We would be happy to send you a copy once they have been agreed.”

2] Has an initial meeting of the panel taken place since my request for information on 25 April, and what was the date of this meeting?

3] Has a Terms of Reference been drawn up?

4] I request a copy of the Terms of Reference.

5] I request the names of any individuals and, where appropriate, the names of the organisations they represent, who have been invited to give presentations in relation to a CFS/ME multi-disciplinary panel as “other interested parties”.

6] I request the names of any individuals and, where appropriate, the names of the organisations they represent, who have already given presentations in relation to a CFS/ME multi-disciplinary panel as “other interested parties” and the dates on which these presentations took place.

7] I request the names of any individuals and, where appropriate, the names of the organisations they represent, who have already been appointed as representatives of “other interested parties” who are to have an involvement with the CFS/ME multi-disciplinary panel.

8] Ms Raymond has advised that, once finalised, the membership of the panel will be published on the MRC website. Does the MRC also intend to publish a list of the names of the individuals and, where appropriate, the names of the organisations they represent, appointed as representatives of “other interested parties” who have an involvement with the CFS/ME multi-disciplinary panel on the MRC website?

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s