APPG on ME: Agenda for meeting on 1 April 2009

The Secretariat to the APPG on ME has published the Agenda for the 1 April meeting.  I had asked Sarah Vero, researcher to Dr Ian Gibson MP (Secretary to the APPG on ME committee), if she could confirm who would be undertaking Secretariat duties following the standing down of the ME Association’s Tony Britton.  This request for information was passed to Dr Des Turner (Chair, APPG on ME committee) for a response.  No response has been forthcoming from Dr Turner but it appears that my request has since been passed on to Heather Walker (Action for ME Secretariat to the APPG on ME).  I have, today, received a copy of the Agenda for the 1 April meeting from Ms Walker who does not confirm whether the ME Association will be providing a replacement for Tony Britton.

The APPG had issued an invitation to the new Minister for Disabled People at the DWP, Jonathan Shaw MP, to attend a proposed meeting in February.  It would appear from the Agenda that the APPG has been unable to obtain a commitment from the Right Honourable Jonathan Shaw MP to attend a meeting in February, March or April. 

The focus of the next meeting appears to be the APPG’s  proposed inquiry into NHS services. 

Given the unresolved concerns over the draft Terms of Reference, issued last October, and given the lack of resources and funding for this proposed inquiry, as intimated to me in January by a source close to the ME Association, I am a little surprised that Dr Turner appears to be pressing ahead.

Previously published concerns about the draft Terms of Reference issued in October 2008 can be read here:

and here:

The draft Terms of Reference can be read here:  

Contact details for the APPG Secretariat here:

Responses already published on ME agenda can be read here:

Response from RiME

Response from Invest in ME

Response from 25% ME Group

Response from Suzy Chapman

Response from Greg Crowhurst

Response from Ciaran Farrell


Minutes of the previous meeting (October 2008) can be read here:


Action for M.E. News

All Party Parliamentary Group inquiry

18 March 2009

An APPG inquiry into NHS service provision for people with M.E. will be the focus of the next meeting of the All Party Parliamentary Group on ME to be held 1.30-3pm, Wednesday 1 April 2009, Committee Room 20, House of Commons.

The agenda will be as follows:

1. Welcome by the Chairman

2. Minutes of the last meeting

3. Matters arising

4. APPG Inquiry on NHS service provision for people with ME

i. Parliamentarians who will be considering evidence
ii. Terms of Reference
iii. Website
iv. Questionnaires and submissions of written evidence
v. Timetable

5. Any Other Business

6. Date of Next Meeting

The APPG on M.E. will be open to members of the public. Before they travel, visitors should check for announcements on the Action for M.E. and ME Association websites, as the meeting room may change at very short notice if it is required by a parliamentary committee.

Entrance to the meeting will at the St Stephen’s Door to the House of Commons, and then ask the way to Committee Room 18. Please allow sufficient time in case there are big queues waiting to go through the security gatehouse. There is separate access for people in wheelchairs.

Please note: amendments to minutes should be put in writing to the Secretariat one week before the meeting. E-mail  or write to: Heather Walker, Action for M.E., Canningford House, 38 Victoria Street, Bristol BS1 6BY