APPG on ME meeting: Wednesday 2 December 09

Inquiry into NHS Service Provision for ME/CFS 

(Last night’s scanned PDF has now been replaced by the official PDF from the secretariat)

Click link for PDF:  Official PDF of APPG Interim Report v1

Update @ 7.00pm

I hope to have a copy of the “Interim Report” on this site in some format, tomorrow or later today.

Update @ 3.15pm

I am advised direct from the meeting that an interim report has been handed out because the Final Report is not ready  – why am I not surprised?



If you are planning to attend today’s meeting in House of Commons Committee Room 14 between 3.15-4.45pm please allow time for passing through security and locating the meeting room.

A bunch of friendly people will be meeting up beforehand for coffee and a chat from

2pm, Jubilee Cafe, just off Westminster Hall


I am anticipating live updates from the meeting. 

Information on the launch and publication arrangements for the APPG on ME’s report resulting out of its unofficial inquiry into NHS service provision for people with ME is expected to be announced this afternoon.  I will post information at the top of this posting and a copy of the report and any press notices as soon as these materialise.

Yesterday, the APPG on ME issued four documents:

Minutes of October 09 APPG on ME meeting

Verbatim transcript of October 09 meeting

APPG on ME Legacy Paper

APPG update on Welfare Reform Bill


Jump to this post to download these all four documents in Word format:


For RiME’s “MPs Referendum on ME Research” go here:

For the APPG on ME’s Legacy Paper go here:

For those interested in scrutinising or commenting on Action for M.E. and AYME’s draft “Election Manifesto for M.E.” go here:

Election manifesto for M.E.
09 January 2010

Election manifesto for M.E.

As the General Election approaches, Action for M.E. and the Association of Young People with M.E. (AYME) – in conjunction with The Princess Royal Trust for Carers – have produced a draft manifesto to draw the attention of the political parties to the issues which affect people with M.E.

This has been based on ideas submitted through an initial online consultation with people with M.E. but we now seek views on the draft manifesto as a whole. If you think we’ve got it wrong or you have other ideas, please let us know your views by completing our short survey before 8 January.

Action for M.E. and AYME will invite parliamentarians of all key parties to sign up to the policies identified in the final manifesto and will proactively approach them to request their support.