The Elephant in the Room Series Three: ICD-11 Topic Advisory Group for Neurology


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The Elephant in the Room Series Three:

ICD Topic Advisory Group for Neurology and June 2009 ICD Revision Process Presentation slides

Not all Topic Advisory Groups (TAGs) working on the development of ICD-11 are listed on the ICD Update and Revision Platform. Evidently, some additional TAGs are in the process of formation.

At the time of writing, no TAG for Neurology is listed on the Update and Revision Platform intranet site but a TAG for Neurology is listed, here, on the WHO’s website (though no other information about the TAG Neurology is provided):

ICD Revision Topic Advisory Groups

“Topic Advisory Groups will serve as the planning and coordinating advisory body for specific issues which are key topics in the update and revision process, namely Oncology, Mental Health, External Causes of Injury, Communicable Diseases, Non-communicable Diseases, Rare Diseases and others to be established.

The primary charge of each group will be to advise WHO in all steps leading to the revision of topic sections of ICD in line with the overall revision process. In particular:

– Advise on particular topic revision steps and establish workgroups and partners to involve – The TAGs will advise WHO on constitution of working groups to undertake generation of necessary evidence, to develop proposals for changes and to focus on specific issues as needed. Each TAG will (a) determine the number and content areas of the workgroups, (b) identify the members and chairs of the workgroups, (c) present an initial mandate to each workgroup, (d) establish procedures for the activities of the workgroups, and (e) facilitate cross-fertilization of ideas and reducing redundant efforts by making workgroups aware of one another’s activities.

– Advise in developing various drafts of topic segments in line with the overall production timeline of ICD-11 TAGs will review initial recommendations of the workgroups and consolidate those to achieve consistency in proposals across groups and areas.

– Advise in developing protocols for and in implementing field trials – TAGs will also assist WHO in identifying appropriate representatives of various stakeholders and in establishing effective collaboration/consultative mechanisms.

Topic Advisory Group for Mental Health  (ToR and members)
GSPN  (ToR and members) (Global Scientific Partnership Coordination Group for Revision of ICD Mental and Behavioural Disorders) 
Topic Advisory Group for Oncology
Topic Advisory Group for Internal Medicine
Topic Advisory Group for External Causes
Topic Advisory Group for Rare Diseases
Topic Advisory Group for Ophthalmology
Topic Advisory Group for Dermatology
Topic Advisory Group for Neoplasms
Topic Advisory Group for Neurology
Topic Advisory Group for Reproductive and Genitourinal


At a two day workshop (epSOS Semantic Interoperability workshop, 22-23 June 2009) Robert Jakob (Medical Officer, Classifications and Terminologies, WHO Geneva) gave a presentation which can be download here:

PDF file  WHO Presentation slides June 2009  (1.33 MB)  WHO Presentation slides June 2009  

Workshop Agenda: epSOS: Ontology-Driven Semantic Interoperability in eHealth

Day 2: Tuesday, June 23, 2009

Impact of semantic interoperable services on medical care and research
Robert Jakob (WHO) – The future of ICD – ICD Revision Process


ICD Revision Process

ICD 11 – June 2009

…building blocks of health information…

Robert Jakob / Bedirhan Ustun

Classifications, Terminologies, Standards

Open PDF file  WHO Presentation slides June 2009  (1.33 MB)  WHO Presentation slides June 2009  

Listed at Slide 12 under “Others in formation” are TAGs for Neurology; Musculoskeletal; Ophthalmology; Maternal – Gender; Dermatology; Dentistry.

See Slide 9 for Tentative Timeline (for overall revision process)

See Slides 12, 13, 14  for ICD-11 Revision Organization Structure

See Slides 17 thru 34 for sample Definition of Disease taxonomy (example given is for Myocardial Infarction)

See Slide 38 for ICD-11 Alpha Drafting Timeline (to May 2010)

See Slide 39 for ICD-11 Alpha Draft Calendar (to May 2010)