RiME: NHS Services Inquiry Notice 6 26 June 2009

Campaigning for Research into Myalgic Encephalomyelitis (RiME)

NHS Services Inquiry

I received the email (below) form Des Turner’s pa on Wed. June 24. It might help if you are scrambling to get something in.

Please note that there are different deadlines:

(1) for written evidence it is June 30 2009
(2) for questionnaire it is July 20 2009.

If you are sending evidence throught the post, Des Turner’s address at Westminster is:

Dr Des Turner MP, House of Commons, London, SW1A OAA.
Website address for Inquiry   www.appgme.org.uk

Dear Paul,

My apologies for not contacting you sooner however I only volunteer with the ME APPG once a week and was unable to attend last week. In regards to your question, we will be more than happy to accept submissions without an executive summary and numbered paragraphs. These are the rules for submission used by House of Commons Select Committees and is often used for APPG inquiries as it is a tried and true method. As APPGs are not stringently required to work along these lines, we are happy for ME patients to submit their evidence in a way best suited to them as long as they are able to answer each question that is relevant to them. This is so we can get as detailed a picture as possible. We also don’t need a phone number – inclusion of names and details are generally simply for our records and also to invite witnesses to give oral evidence if their written evidence raises a number of pertinent questions that the Group feels would be worth follow-up.

As long as we have a physical or email address to invite any patients to give oral evidence, we won’t need a phone number. I hope this answers your questions and please feel free to distribute my answer to your friends and colleagues. The Group is only too aware of the damage and drain that ME has on patients, so we very much appreciate the amount of effort this questionnaire requires and hopefully the Group can work with sufferers and support groups to ensure that the best treatment possible is on offer to everyone.



Have you submitted evidence to the Inquiry? If so, please send us copy for RiME Evidence Bank (anonymity respected).

RiME Evidence Bank:

Paul Davis 10 Carters Hill Close, Mottingham, London SE9 4RS  rimexx@tiscali.co.uk