Imperial College MDU modifies its XMRV clarification notice

Imperial College, London, Molecular Diagnostic Unit (MDU) modifies its XMRV clarification notice

Shortlink: http://wp.me/p5foE-2Mz

It has come to my attention, today, that the “notice of clarification” posted on the webpages of Imperial College Molecular Diagnostic Unit (MDU) has been modified since first published, last Monday.

The notice now reads:

XMRV testing 

The MDU offers XMRV testing for research purposes only. If you are a researcher who is interested in XMRV testing, please contact the unit with an outline of your requirements.

There has been some confusion around the availability of the XMRV test, for which we apologise. We would like to clarify that it is only available as part of an ethically approved research project. We emphasise that our laboratory does not deal directly with patients and we are not advising people who are concerned that they might have CFS, or who have been diagnosed with CFS, to request this test.

For reference, the notice published on Monday, 8 February had read:

XMRV testing

We wish to apologise for any confusion concerning the availability of this test and would like to clarify that it is only available as part of an ethically approved research project. We emphasis that our laboratory does not deal directly with patients and we are not advising people who are concerned that they might have CFS, or who have been diagnosed with CFS, to request this test.

Note that neither notice clarifes for which diseases/conditions/study domains this XMRV test facility is being offered.

Nor does the Molecular Diagnostic Unit confirm the information put out by the ME Association on Saturday, 6 February, that the test “…only relates to the availability of the Imperial College XMRV test to referring doctors who are dealing with cases of prostate cancer.” 

The ME Association has not been prepared to disclose the source of this information.

http://tinyurl.com/MEAonICLXMRVtest

ME Association

6 February 2010

Late last night The ME Association was informed that this announcement about XMRV testing does not apply to people with ME/CFS, or suspected ME/CFS. It only relates to the availability of the Imperial College XMRV test to referring doctors who are dealing with cases of prostate cancer. A full clarification will appear on the Imperial College website on Monday. It will appear here once we have it.

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