From the ME Association
22 June 2007
The ME Association has been informed today that the NICE guideline on ME/CFS will now be published on Wednesday 22 August 2007.
All versions of the guideline will be available electronically via the NICE website.
A patient version will also be available in hard copy free of charge from the NHS Response Line on 0870 1555 455 (reference number to follow) from that date onwards.
The ME Association has organised a public meeting at which Professor Richard Baker (Chair of the guideline development group) and other people from NICE will present the new guideline and describe how it will be implemented within the NHS.
Afterwards there will be an opportunity for questions from the floor.
This very important meeting will take place in Peterborough on Saturday 15 September at 2pm.
More details will follow on the MEA website and in the July issue of ME Essential magazine.
The ME Association continues to believe that the draft of the NICE guideline that has been made available for comment by stakeholders is completely unfit for purpose.
In order to continue our campaign we are using the Freedom of Information Act in an attempt to obtain certain information from NICE regarding the guideline development process. NICE have so far refused to release this information. We have, therefore, appealed against this decision and are awaiting the result of the appeal.
We have also proposed that comment on the NICE guideline should be contained in any further Early Day Motion (EDM) that is prepared by MPs on the ME All Party Parliamentary Group.