Summaries of James Lind Alliance research meetings, 2007 and proposed agenda for 2008

Summaries of James Lind Alliance research meetings held during 2007 and proposed agenda for 2008

JLA AMRC web page & Lancet page

The James Lind Alliance website now has information and reports relating to two research meetings held in September 2007 (with the AMRC) and June 2007 (with The Lancet).

SEPTEMBER MEETING: Should Patients tell Researchers what to do: If so, how?

JUNE MEETING: How can clinical trials serve the needs of clinicians and patients more effectively?

The James Lind Alliance aims to:

1 Draw attention to the importance of research agenda that addresses unanswered questions about treatment uncertainties prioritised jointly by patients and clinicians.

2 Promote working partnerships and collaborations between patients and clinicians to identify and promote their shared priorities for therapeutic research.

3 Increase general awareness and understanding of the need to refocus the therapeutic research agenda.

The presentations and discussions involving researchers, patients and medical charity representatives that made up the two meetings held during 2007 covered a lot of ground that is relevant to ME/CFS and were well worth attending.

The proposed programme for 2008 can be found here

Dr Charles Shepherd

Information posted by The ME Association

ENDS

******************************************************************************************************

LEGAL APPEAL – JUDICIAL REVIEW: CFS/ME NICE GUIDELINES

The ONE CLICK Group

NICE WEDNESBURY UNREASONABLE

The One Click Group launches the Legal Fighting Fund to challenge the CFS/ME NICE Guidelines in Britain by Judicial Review
What It Is: Judicial Review – CFS/ME NICE Guidelines
Who Will Conduct It: Saunders Solicitors LLP
What It Will Cost: Approximately £20,000
Funds Due In: 5 November 2007
Court Application File Date: 22 November 2007

* See NICE Guidelines – Judicial Review Action legal briefing
* See Judicial Review – Legal Appeal
* See Legal Appeal Instructions

For full story go to

The ONE CLICK Group

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