ME agenda note: Please direct all enquiries relating to either of these events to the organiser.
M.E. Peoples Day Events 12th and 15th May 2008
TO BE DISTRIBUTED WIDELY!
Please note the following M.E. People’s Day Events 2008 taking place in London on International M.E./CFS Day, 12th May 2008. And the annual M.E. Event held in the Houses of Parliament, on Thursday 15th May.
They are national M.E. events therefore, anyone affected by M.E. including carers, friends and families or anyone with an interest and/or concern with M.E. can attend.
All national M.E. charities representatives, groups, organisations and individuals are warmly welcome to attend and encouraged and participate – especially, to advertise both of these M.E. Events in their email mailouts, newsletters and websites:
1. MONDAY 12th MAY:
11:00 AM – 11.30 AM Informal Gathering opposite Downing Street, Whitehall, London SW1
12.00 NOON Presentations to 10 Downing Street by a small presentations group and photo-call
12.30 PM Presentations to Department of Health, Richmond House, Whitehall, London SW1
1:00 PM – 2:30 PM M.E. Picnic & Poetry, St James Park (10 minutes walk from Whitehall) London SW12
THURSDAY 15th MAY:
11:30 – 1:15 PM M.E. Picnic & Poetry, the Victoria Tower Gardens (just further along from Houses of Parliament Black Rod Entrance), overlooking the Thames
1:15 PM – 1:30 PM Join Lobby Queue at St. Stephen’s Gate, outside Houses of Parliament
1:45 PM Prepare to enter Committee Room 6
2:00 PM – 4:00 PM Open Forum Meeting to discuss the current affairs in the M.E. World
The Open Forum is an opportunity for members of the M.E. Community, its charities, groups and organisations to discuss the current state of affairs in the M.E. World and where we are in relation to: NICE, Occupational Health Guidelines, DWP, the Mental Health Act and Mental Capacity Bill and its implications with M.E., APPG On M.E., the M.E. Observatory, recent Government initiatives, representation of national M.E. Charities, NHS-Plus, Charity Commission, Carer Issues, Research and a number of other related M.E. topics.
There will be an agenda for the day and it is envisaged, that people who have a specialist interest on an above given topic, will come forward with a presentation of documented references to naturally state their case.
If you would like to present a case on one of the above topics please make contact in the first instance
We very much hope the 12th May M.E. People’s Events founder and patron, Trev Wainwright will be able to join us at one or both of the events, subject to health and commitments, of course.
The usual “creature-comforts” are highly recommended for both days e.g. extra clothing and waterproofs, fruit, snacks etc
Plenty of refreshments for the duration of the day/s and packed lunches for the Picnic/s are a must.
Mobility scooters and wheelchairs users are most welcome to both Events. Those assisting are most welcome as well. A separate entrance to the House of Commons applies so please make yourself known on arrival, to the police officers outside Parliament, who will arrange a guide to escort you through Security and to the Committee Room.
Placards of a serious or humorous nature are welcome to display at the 12th May Gathering, opposite Downing Street. However, please note: NO placades will be allowed at the 15th May House of Commons Event. Thank you.
12th May M.E. People’s Day – 2008 Events
Address: PO Box 775 Peterborough, Cambridgeshire PE1 4WZ
Landline: 01733 552872
Mobile: 07742 615 952
Email address: 12MayM.E.PeoplesDay_Events@live.co.uk
Alternative email address: firstname.lastname@example.org