This is Sussex http://www.thisissussex.co.uk
ME campaigners offer condolences to Lynn’s family
[Features commentary from Jane Colby (The Young ME Sufferers Trust) and Sussex & Kent M.E. Society]
Friday, December 12, 2008, 12:00
Jane Colby, executive director of The Young ME Sufferers Trust, has written a number of books raising awareness of the severity of ME, and spoke in detail with Kay Gilderdale about the problems Lynn had encountered after she was taken into hospital. In Ms Colby’s 1996 book – ME the New Plague – Lynn’s treatment was described anonymously.
“Some of her stories were just wicked, just wicked. There is no other way to describe the way in which she was treated,” said Ms Colby. Suffering fits at specific times of the day, doctors would deliberately try to disorientate Lynn to suggest she was making it up. They would leave food across the room from her, and would leave her lying on the floor if she fell out of bed to try to force her to move…
Ed: Michael Foster is Labour MP for Hastings and Rye. If your MP has issued a public statement please send a copy or a link to ME agenda.
My Word – December 12
11 December 2008
By Michael Foster MP
THE story on page 2 is indeed a tragic one – that of a young girl struck down by the shocking illness M.E. Lynn Gilderdale was found dead at her home last week aged 31, after 14 years of suffering.
THE story on page 2 is indeed a tragic one – that of a young girl struck down by the shocking illness M.E. Lynn Gilderdale was found dead at her home last week aged 31, after 14 years of suffering. What exactly caused her death isn’t yet known, but her mother has been quizzed on suspicion of murder. No doubt in time the full truth will come out, but one can hardly imagine the pain the whole family has gone through in the past, and indeed is still going through today.
By Suzanne Power
11 December 2008
I understand Lynn Gilderdale, a 31-year-old woman who was seriously ill with ME for 17 years, who died last Thursday in Britain, as if I knew her…
On 9 December, The ME Association published a round up of their own involvement and anticipated involvement in media broadcasts see:
On 8 December, Dr Charles Shepherd (MEA) wrote to the Daily Mail about the use of “Yuppie Flu” in an article headline, here:
AfME (Action for ME) Daily News Summaries here http://www.afme.org.uk/news.asp