Another YouTube video from: action4change4me
UK All Party Parliamentary Group on ME to carry out inquiry
Added: 24 October 2008
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“An analysis of the aims of the inquiry with reference to the proposed inquiry’s status and likely trajectory in terms of power, people and the politics of those involved in it and especially the role of the key ME charities.”
Ed: APPG on ME Inquiry into NHS service provision for people with ME: Draft terms of reference
During the last meeting of the All Party Parliamentary Group on ME (held on 8 October 2008) Dr Des Turner MP, the group’s chair, presented a draft Terms of Reference for the “APPG Inquiry into NHS service provision for people with ME” – a project Dr Turner had proposed at the group’s previous meeting, in July.
Between the July and October meetings, Dr Turner met with patient organisation reps to discuss his proposed inquiry, but the ME community, itself, has been marginalised from influencing the inquiry’s remit and from the drawing up of its terms of reference. The terms of reference were presented at the meeting in October, where it was agreed that this document would be accepted, in principle, subject to minor amendments.
Click here for a copy of the Draft Terms of Reference in PDF format