GOSH gives platform to Lightning Process
(Correction: An earlier version of this post had erroneously associated Ms Anna Gregorowski with the PRIME Project – apologies to Ms Gregorowski for this misattribution. )
In the previous posting Forward-ME: Minutes of meeting 8 July 2009 Dr Charles Shepherd (ME Association) is reported as having raised concerns in relation to a forthcoming event at University College London in conjunction with Great Ormand Street Hospital (GOSH) at which Phil Parker of the Lightning Process is scheduled to give a presentation. Also presenting is Prof Peter White (BARTs, co-PI for the PACE Trial).
See: Forward-ME: Minutes of meeting 8 July 2009 Minute item 5. Lightning Process
The event to which this item refers is:
University College London in conjunction with Great Ormond Street Hospital
From Assessment to Recovery: Holistic Approaches to Working with Young People with CFS/ME
This annual one day event will provide you with skills and knowledge on how to manage Chronic Fatigue Syndrome (CFSME) when working with children and young people.
The holistic theme is throughout the day from diagnosis to treatment. You will learn about motivational interviewing and have an introduction to the Lightning Process. You will hear from young people accessing support at GOSH and be able to ask them questions.
There will be two interactive workshops: Dietary management and Interdisciplinary skills for treatment. There will be a mini-lecture focussed on Medical management.
Date: 30 September 2009
Why you should attend
The day will provide
– Interdisciplinary assessment and treatment ideas
– opportunity for networking
– interactive workshops
– informative presentations
Who should attend?
Clinicians and health professionals who work with young people and /or have a special interest in CFSME
Please note that this is a draft programme and is likely to change before the event. Please continue to check the website for updates.
08.45 – 09.15 REGISTRATION & REFRESHMENTS
09.15 – 09.45 Keynote address Ms Anna Gregorowski
09.45 – 10.30 The importance of diagnosis & the power of labeling for patients with chronic, unexplained, disabling fatigue Professor Peter White
10.30 – 11.15 Helping kids get ready, willing & able to make changes: motivational interviewing in chronic illness Dr Deborah Christie
11.15 – 11.30 REFRESHMENTS
11.30 – 12.30 Video diaries Patient/parents
12.30 – 13.00 Outpatient Rehabilitation Programme at GOSH Dr Anna Hutchinson & Monica Samuel
13.00 – 13.45 LUNCH
13.45 – 14.00 Networking options
14.00 – 15.15 Workshops/Mini lectures (each delegate selects 1 workshop/mini lecture to attend)
1. Dietary management of CFS/ME Judith Harding
2. Clinical investigation…to test or not to test Dr Vic Larcher, Dr Jo Begent & Dr Terry Segal
3. Basic skills of treatment & management of CFSME, including relapse prevention Dr Anna Hutchinson & Monica Samuel
15.15 – 15.30 REFRESHMENTS
15.30 – 16.15 Introduction to Lightning Process Phil Parker
The GOSH Chronic Fatigue Syndrome/ME (CFSME) service is committed to sharing expertise & knowledge related to CFSME & young people. We do not endorse or recommend treatment & management other then that recommended by NICE (www.nice.org.uk) & RCPCH guidelines (www.rcpch.ac.uk).
Dr Anna Hutchinson, Senior Clinical Psychologist
Monica Samuel, Senior Physiotherapist
Please refer to UCL site for meeting registration details