Update on 100 days to save DLA and AA from the axe (Benefits and Work Campaign)

Latest:  @ 14th August, 17,654 people had signed up since the campaign began on 6th August.

Benefits and Work Campaign   Care   DLA    AA Attendance Allowance   Green Paper Shaping the Future of Care Together Consultation

Updates on 100 days to save DLA and AA from the axe (Benefits and Work Campaign)

For introduction to the B & W 100 Days Campaign see previous posting, 5 August: 100 days to save DLA & AA  from the axe

Update One:

DLA and AA campaign – what happens next?

6 August 2009

Many thanks for joining the No More Benefits Cuts campaign.

We had an astonishing 5,245 people sign up in the first 24 hours of the campaign. I confess this has taken us rather by surprise: we thought it would take most of August just to get 1,000.

What happens next?

Over the coming months we’ll be sending out an email each week asking you to do one thing in relation to the campaign. It might be writing to your MP, submitting a response to the green paper, contacting a local disability group and so on.

The emails will be sent out each Tuesday morning with the first one being sent on Tuesday 11 August.

As new people sign up to the campaign they will receive the same emails in the same order that you received them. Once the 100 days are up the emails will stop.

We’ve already been contacted by literally hundreds of people about the campaign and in truth it’s already started without us. Lots of you have been posting on forums, contacting your MPs, writing to papers, emailing TV and radio programmes and generally making an enormous fuss.

Thanks again. And, until next Tuesday, please keep up the good work – you don’t really need us at all.

Best regards,

Steve Donnison
Keep up to date with the no more cuts campaign at:



Update Two:

Save DLA and AA – the first crucial task

11 August 2009

Persuading disability charities to speak out against the threat to disability benefits is absolutely crucial. Unless leading agencies like Mind, Arthritis Care and the MS Society are prepared to openly oppose these proposals it will be very difficult to halt them. The government will be able to argue that they consulted with ‘stakeholder’ organisations and they supported the green paper.

So whether charities are swayed by the strength of your arguments or alarmed by the prospect of losing members who feel abandoned by them, it’s vital that they commit themselves to defending AA and DLA. So far only RNIB has been courageous enough to risk the wrath of six secretaries of state rather than desert its members.

So what we’re going to suggest you do today is to get in touch with a local or national disability organisation, preferably one that deals with a condition that affects you or someone you care for.

Even if all you can manage is a quick email saying:

‘What are you doing about the green paper plans to abolish some disability benefits?’

that will be enough to make them realise people are aware of, and concerned about, the issue.

But if you feel able to write in more detail, below are some of the points you may want to make. We haven’t written a standard letter or email for people to copy because we think that they may quickly be dismissed as just a sort of spam.

1 Explain very briefly that you are concerned about the proposals in the Shaping the Future of Care Together green paper to integrate some disability benefits into a new funding stream for a National Care Service

2 Explain why DLA care component or AA is important to you.

3 Point out that it’s vital that their organisation work with other disability charities to fight with you on this issue, because the government will find it hard to ignore a wide coalition of disability organisations.

4 Point out that RNIB have put a statement on their website saying they will oppose the scrapping of AA and other disability benefits and that if such a reputable organisation is prepared to do this then there’s no reason why every disability organisation can’t do the same.

5 You might want to explain that at the moment the campaign against abolishing disability benefits is being led by a private sector company and that you think this is highly inappropriate, it ought to be a coalition of charities leading the way.

6 You may also want to suggest that if charities look the other way as their members are deprived of a vital part of their income then it may result in charities getting a great deal less support, fewer members and fewer donations in the future.

7 Most important of all: ask for a reply. And if you don’t get one, keep going back until you do. And when you do, send us a copy and we’ll publish at least some of them. Or if you’re a Benefits and Work member, post the reply in the forum here:


If you’d like to contact more than one charity, then members of the Disability Benefits Consortium are worth considering. This is a coalition of charities which “aims to lobby and campaign on welfare benefits as they relate to disabled people.” Clearly they are the people who should be running this campaign, rather than Benefits and Work.

You can find the email contact details for all these organisations on this page:


Another possibility is the members of the green paper stakeholder panel. There’s a list of the members here, though we haven’t had time to research email addresses – volunteers to do so would be very welcome:


If you want to be getting on with other things rather than waiting for next weeks’ email, then there’s a few suggestions here:


Thank you again for signing up to the No More Benefits Cuts campaign. At the time of writing you are one of an astonishing 13,815 people who have done so in less than a week.

You can read more about what’s been happening, from RNIB’s statement to details of a local campaign in deepest Cornwall, on this page:

Many thanks also to everyone who’s been in touch. I do apologise if we haven’t replied to your email or returned your call – there have been many more than we could cope with. But we do very much appreciate hearing what people have been doing.

Please feel free to forward or publish this email.

Good luck,

Steve Donnison


See also previous posting: Green Paper: Shaping the Future of Care Together Consultation

for links to Green Paper Care Consultation website


ME patient organisation responses:


Fears about the Green Paper ‘Shaping the Future of Care Together’

Thursday, 13 August 2009

Many people with ME/CFS are expressing fears that the Government Green paper ‘Shaping the Future of Care Together’ published on 14 July 2009 threatens the future of vital benefits like Attendance Allowance and Disability Living Allowance. The ME Association is studying the implications of this Green Paper, and will publish its initial response to the consultation next month (September).


Action for M.E.

Care or cuts?

The Green Paper, Shaping the future of care together, proposes more than a National Care Service for adults in England. It seems to suggest that Westminster plans to stop paying Attendance Allowance and the care component of Disability Living Allowance (DLA) – and give the money to social services, to administer as part of a personal budget instead.

If true, how would this affect you? Action for M.E. is developing a survey and a briefing paper, which will be circulated shortly via this bulletin* and our website.

 *[Ed: Keep Me Updated bulletin]