Dr H O’Dowd: HTA CBT paper; Dr. Bill Long: Critical Assessment for Judges and Lawyers (MSBP)
Two papers which may be of interest:
Dr Hazel O’Dowd, Team Leader CFS/ME Services, Frenchay Hospital, Bristol will be one of the presenters at the Royal Society of Medicine’s regional conference of Chronic Fatigue Syndrome, taking place this Thursday, in Bristol.
Dr O’Dowd’s presentation is titled “Cognitive behaviour therapy for behaviour change in medical conditions” .
In 2006 the paper:
Cognitive behavioural therapy in chronic fatigue syndrome: a randomised controlled trial of an outpatient group programme: H O’Dowd, P Gladwell, CA Rogers, S Hollinghurst and A Gregory was published by The Queen’s Printer and Controller, HMSO.
The research reported in this document was commissioned by the NHS R&D Health Technology Assessment Programme (HTA).
“The research findings from the NHS R&D Health Technology Assessment (HTA) Programme directly influence key decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC) who rely on HTA outputs to help raise standards of care. HTA findings also help to improve the quality of the service in the NHS indirectly in that they form a key component of the `National Knowledge Service’ that is being developed to improve the evidence of clinical practice throughout the NHS. […] The HTA Programme commissions research only on topics where it has identified key gaps in the evidence needed by the NHS. Suggestions for topics are actively sought from people working in the NHS, the public, service-users groups and professional bodies such as Royal Colleges and NHS Trusts. Research suggestions are carefully considered by panels of independent experts (including service users)…”
The PDF of the full 140 page paper
Cognitive behavioural therapy in chronic fatigue syndrome: a randomised controlled trial of an outpatient group programme H O’Dowd,1* P Gladwell,1 CA Rogers,2 S Hollinghurst,3 and A Gregory,1 1 Pain Management Centre, Frenchay Hospital, Bristol, UK; 2 Bristol Heart Institute, Bristol Royal Infirmary, UK; 3 Department of Community Based Medicine, University of Bristol, UK
* Corresponding author Declared competing interests of authors: none
can be downloaded here
I have not yet had time to look at the second document and don’t know how relevant or useful it may be to the ME community but it may also be of interest. The document was sponsored by the Autism Research Council (US).
Former Law Professor Debunks Munchausen Syndrome By Proxy Myth
In recent years, several mothers in the autism community have been accused of Munchausen Syndrome By Proxy (MSBP), in which the mother is thought to be imagining the medical problems in her son/daughter. Former law professor, Dr. Bill Long, wrote a review paper for lawyers and judges on MSBP.
MUNCHAUSEN SYNDROME BY PROXY (“MSBP”) / FACTITIOUS DISORDER BY PROXY (“FDBP”):
A Guide for Judges, Lawyer and Parents, William R. Long, M. Div., Ph. D., J. D.; July 12, 2008
Dr. Bill Long: firstname.lastname@example.org
A Critical Assessment for Judges and Lawyers
PDF of full paper here: http://autism.com/families/MBSP_unabridged.pdf [41 pages PDF]
and an Executive summary here: http://autism.com/families/msbp.htm