Category: Protests

Benefits and Work: Final newsletter No More Benefits Cuts Campaign

Update from Benefits and Work’s Steve Donnison

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Benefits and Work

www.benefitsandwork.co.uk

FINAL NEWSLETTER AND UNMISSABLE HALF-PRICE OFFER

This is the final newsletter in the No More Benefits Cuts Campaign. We will be deleting all the email addresses from this list on Friday afternoon.

However, if you want to stay informed about government plans for DLA and AA there are details of how to sign up for our free fortnightly newsletter below.

Also below is an unmissable half-price offer on membership of Benefits and Work, exclusively for subscribers to this newsletter.

WHAT YOU HAVE ACHIEVED

Within hours of our announcing our 100 days campaign, news of the danger to DLA and AA spread across the internet on blogs, forums and social networking sites and you began to make your voices heard.

Contributions to the Big Care debate website went from a few hundred to over 4,000, almost all hostile to the plans for disability benefits.

Many disability charities were unaware of, or reluctant to admit, the existence of the threat. But a deluge of emails from you made them realise that they had no choice but to respond to the green paper.

Almost 22,000 people signed a petition protesting against threats to DLA and AA on the No 10 website – the petition remains open until 7th December.

Virtually every MP in the UK received faxes and letters from you expressing your anger and concern.

Motions criticising the attack on disability benefits were laid before the Scottish and Welsh assemblies.

Questions were asked about the future of DLA and AA in debates in the House of Lords and the House of Commons.

Lord Ashley of Stoke warned that “any attempt by the Government to withdraw these benefits, or any benefits at all, will be very strongly resisted by disabled people, by their organisations and by many Members of both Houses of Parliament”

The Conservatives announced that they would oppose plans to incorporate AA into funding for the National Care Service.

Forced into the open by the growing clamour, Health Secretary Andy Burnham announced that he had ‘heard the concerns and worries about disability living allowance’ and “I can state categorically that we have now ruled out any suggestion that DLA for under-65s will be brought into the new National Care Service.”

So, in just one hundred days, and with no support whatsoever from claimant- bashing tabloids, you have forced the government to rule out any hopes it had of snatching DLA for under-65s to fund the National Care Service.

And you’ve also finally forced them to disclose, even if only by omission, that DLA for people aged 65 and over, as well as AA, is still under threat.

All this whilst proposals are still at the green paper stage, when ministers would normally expect only a few professionals and specialist organisations to even notice their existence, let alone express an opinion.

WHAT HAPPENS NEXT

We hope that all the disability charities that took part in the green paper consultation will publish their responses online. Perhaps you could encourage any charity with which you have a connection to do so?

If they don’t, we will be making freedom of information requests for copies of their submissions.

Aside from that, it’s now largely a question of waiting to see what is in the white paper, if it is indeed published early next year.

We don’t yet know what role – if any – Benefits and Work will have if the white paper poses a serious threat to disability benefits. We’re hoping that disability charities will show real determination and leadership in their opposition to any proposed cuts and that we will be irrelevant.

If not . . . we may be back.

HALF-PRICE MEMBERSHIP

When we began this campaign we were repeatedly accused by individuals and organisations of inventing the threat to DLA in order to make a profit. In truth, as we’ve discovered in the past, campaigning costs us money.

In fact, whilst this campaign was at its height, subscriptions to the site actually fell.

The reason is simple: most individuals and agencies subscribe to the Benefits and Work website when they have a specific benefits problem that needs a solution, not to support a cause. Campaigning takes up a huge amount of time that we would otherwise devote to producing and promoting new material that helps people solve those problems. Less new DLA, IB and ESA material means fewer new subscribers.

So, we offer no apologies whatsoever for making an offer to readers of this newsletter who perhaps haven’t got an urgent benefits problem now, but foresee the possibility arising in the next year and who would like to become part of the Benefits and Work community:

Subscribe by Paypal before 5.00pm on Friday November 20th and get a year’s subscription for £9.25 – less than half the standard price of £18.55.

To take advantage of this offer, register with the site, if you haven’t already. Then log in, click on the New subscription link on the left hand side of the page and type the following code in the coupon box:

ind6254

If you’re an existing subscriber and want to take advantage of this offer, you can extend your current membership by another year using the same code. But please drop us an email to tell us you have done so, so that we can make sure the software has added the extra year to your subscription.

Visit the Join us page to begin the process:

http://www.benefitsandwork.co.uk/join-us

PROFESSIONALS ONLY

We’re also offering a reduction to organisations who subscribe to this newsletter.

Purchase your organisational subscription by Paypal before 5.00pm this Friday 20th November and get a year’s professional membership for £60 instead of £93, using the following code:

prof3574

Existing professional subscribers can extend their current membership by a year using the same method – again please email us to let us know you have done so.

This offer applies only to Paypal payments – which can be made using any credit or debit card – we can’t accept payment by invoice for this offer.

Visit the professionals subscription page to begin the process.

http://www.benefitsandwork.co.uk/join-us/professionals

FREE NEWSLETTER

We provide a completely free email newsletter which we now publish every fortnight. It covers all the news relating to incapacity and disability benefits and will keep you up-to-date with what’s happening in relation to the National Care Service. You can sign up for it by typing your first name and email address into the boxes on this page:

http://www.benefitsandwork.co.uk/free-newsletter

And that’s it.

Many thanks for the literally thousands of letters, emails and phone calls offering support and information we’ve received over the last 100 days. It’s been a real privilege to hear from – and campaign with – so many people who aren’t prepared to be pushed around by politicians.

Good luck,

Steve Donnison

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

POST YOUR NEWS

Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

Unfortunately, we’re getting so many emails on this subject that we are unlikely to be able to respond individually. But we do appreciate hearing your news and views and we do encourage you to publish them for others to read on the forums detailed above.

Benefits and Work: Hundreds of claimants unjustly imprisoned

Benefits and Work: Hundreds of claimants unjustly imprisoned

Shortlink: http://wp.me/p5foE-2nk

And update from Benefits and Work’s Steve Donnison  |  12 November 2009

In this newsletter we look at the shocking evidence provided by a welfare benefits expert that every year hundreds of claimants are being unjustly imprisoned because of misleading evidence provided to criminal courts by the DWP.

It’s not possible to prove whether the DWP is providing inaccurate evidence deliberately or whether it is solely through negligence. But, given the department’s desire to get as many tabloid headlines as possible about claimant fraud, many people will reach their own conclusions.

And still on the subject of potentially misleading evidence, we revisit the issue of taping your Atos benefits medical. Regular readers will know that Atos insist that if claimants want to record their examination they must agree to provide, at their own huge expense, a sound engineer and a tape machine capable of making two tapes at the same time.

We discover what happened when one of our members did exactly that.

We couldn’t leave the topic of misleading statements without revisiting the issue of DLA and the proposed National Care Service. Our suspicion that health secretary Andy Burnham’s apparent reassurance about DLA last month left claimants aged 65 and over still under threat is looking increasingly accurate. Burnham failed to answer repeated questions on the subject fired at him by MPs during a debate on the National Care Service.

What’s more, an undertaking to reveal full costings of the new service before the end of the consultation period has now been broken, leaving charities threatening to use the Freedom of Information Act.

That same consultation ends tomorrow. If you haven’t already contributed to the mauling the government’s proposals are receiving on the Big Care debate website, this is your final chance to do so.

Good luck,

Steve Donnison

More secrecy around National Care Service
http://www.benefitsandwork.co.uk/news/latest-news/1123-more-secrecy-around-national-care-service
The government has gone back on a pledge to reveal the true cost of its proposed National Care Service before the green paper consultation period ends on November 13th, prompting further suspicions about the honesty of the whole consultation process.

Burnham refuses to answer DLA questions
http://www.benefitsandwork.co.uk/news/latest-news/1122-burnham-refuses-to-answer-dla-questions
Health secretary Andy Burnham repeatedly failed to answer questions about disability living allowance for people aged 65 and over during a commons debate on the care green paper last week.

MEMBERS ONLY
Not yet a member?
Find out how to join Benefits and Work and get instant access to all our downloadable claims and appeals guides, DWP materials, members news items and more.
www.benefitsandwork.co.uk/join-us

Hundreds of claimants unjustly imprisoned
http://www.benefitsandwork.co.uk/news/members-only-news/1134-hundreds-of-claimants-unjustly-imprisoned
Many hundreds of claimants are unjustly imprisoned every year a welfare benefits expert has told MPs . In one case he assisted with, a woman prosecuted for a £47,000 overpayment had in reality under-claimed benefits.

Getting permission to record your medical
http://www.benefitsandwork.co.uk/news/members-only-news/1133-getting-permission-to-record-your-medical
The issue of tape recording benefits medicals is one that frequently comes up in our discussion forums. Atos, the company that caries them out, insists that if you wish to do so you must provide a professional operator and a properly calibrated tape machine that records two copies of the examination at the same time. Deeply unreasonable and unaffordable as these conditions are, what happens when a claimant actually meets them?

(c) 2009 Steve Donnison. All rights reserved

Benefits and Work: You’re not so easy to silence

An update from Benefits and Work’s Steve Donnison

WordPress Shortlink: http://wp.me/p5foE-2lY

Steve Donnison  |  10 November 2009

www.benefitsandwork.co.uk

You’re not so easy to silence

With just a few days of consultation left now, Andy Burnham’s attempt to ‘close down…the debate and controversy over disability living allowance’ seems to have been only a partial success.

As we explained in our last newsletter, Burnham gave an assurance that DLA for people aged under 65 was not going to form part of the funding for the National Care Service. Like many others, we pointed out that this means that DLA for people aged 65 and over, as well as AA, is still under threat. We urged people not to let this cunningly worded concession succeed in silencing them.

And you certainly didn’t.

People have continued to sign the No 10 petition, which is now at number 6 on the Downing Street site with over 20,000 signatures.

http://petitions.number10.gov.uk/AttendanceA/

And posts have continued to pour into the Big Care debate website which now has almost 3,400 submissions.

http://careandsupport.direct.gov.uk/greenpaper/execsum/

Many recent posts make it clear that you are aware that assurances have been give about DLA for people aged under 65, but you’re still not happy.

In addition, following our revelations in a members only article on the site at the end of last month, many recent posts have been about the fact that the government proposes to send everyone a one-off £20,000 tax bill on their 65th birthday to help cover the cost of the proposed National Care Service.

More secrecy around National Care Service
http://www.benefitsandwork.co.uk/news/latest-news/1123-more-secrecy-around-national-care-service

The tax will be means-tested, so not everyone will have to pay the full amount. But it can be recovered from your estate after you die, if you own a home or other property. And the tax also won’t cover the cost of food and accommodation if you have to go into residential care, only the care itself.

So, you still facing losing your disability benefits at age 65, you’ll still get handed a £20,000 tax bill and yet, if you do have to go into residential care for two years, the green paper estimates that you will still have to pay half of the estimated £50,000 cost from your own pocket.

MPs were also not fooled into silence by Burnham’s DLA announcement. In a debate on the proposals at the end of last month, Burnham was repeatedly questioned about whether DLA for people aged 65 and over would be used to fund the National Care Service. He repeatedly dodged answering the question.

Burnham refuses to answer DLA questions
http://www.benefitsandwork.co.uk/news/latest-news/1122-burnham-refuses-to-answer-dla-questions

Suspicions about the government’s plans have been further fuelled by its refusal to publish promised details of how the new service will be funded.

More secrecy around National Care Service
http://www.benefitsandwork.co.uk/news/latest-news/1123-more-secrecy-around-national-care-service

A coalition of charities – the Care and Support Alliance – is now set to make a Freedom of Information request to try to obtain the information.

Unfortunately, there is at least one organisation which continues to claim that DLA is now safe. . . Disability Alliance. Until the end of last week their home page still proclaimed ‘DLA no longer part of social care plans. See our press release.’

The link has now been removed from their home page, but the press release stating that “…the Disability Living Allowance (DLA) benefit will not be affected by Government plans to merge some benefits with social care funding” remains. So, Burnham may have succeeded in closing down the debate in one place at least.

For the rest of us, we still have until Friday to make our contribution to the Big Care debate and to sign the petition.

We’ll be back next Tuesday with our final email of this campaign and information about how you can stay in touch with what happens next.

Good luck,

Steve Donnison

Please feel free to forward or publish this article.

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

POST YOUR NEWS
Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

Unfortunately, we’re getting so many emails on this subject that we are unlikely to be able to respond individually. But we do appreciate hearing your news and views and we do encourage you to publish them for others to read on the forums detailed above.

RiME: Newsletter No. 11

Paul Davis of RiME has recently issued a Newsletter.

WordPress Shortlink: http://wp.me/p5foE-2iE

RiME Newsletter No. 11

Permission to Repost

Campaigning for Research into ME (RiME)  www.rime.me.uk

RiME Newsletter No. 11 is now available. Items include:

ME: Activism + Organisation: The Need for Change

MPs Referendum on ME Research

NHS Services Inquiry: RiME Bank of Evidence

ME Association – Running with Hare and Hounds?

What does Lady Mar stand for? Forward-ME Condemned

MRC – Freedom of Information

Lightning Process

Conservatives + Lib Dems – latest.

If you want a copy posted to you, please send SAE plus 4 unused postage stamps (the few who have sent contributions over last year will get it anyway).

In order to survive, RiME depends on contributions from its supporters. We welcome unused postage stamps.

Paul Davis

10 Carters Hill Close, Mottingham, London, SE9 4RS   rimexx@tiscali.co.uk  

www.rime.me.uk

Benefits and Work: DLA saved – for some

An update from Benefits and Work’s Steve Donnison.

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From Steve Donnison  |  27 October 2009

DLA saved – for some

It’s a start, but nowhere near enough.

Health secretary Andy Burnham has said that he has “heard the concerns and worries about disability living allowance”. As a result, he has announced that:

“I can state categorically that we have now ruled out any suggestion that DLA for under-65s will be brought into the new National Care Service.”

Good news indeed . . . for some . . . for the moment.

But definitely not for the one and a half million people who depend on AA.

Nor for the for the three quarters of a million people aged 65 and over who receive DLA.

Not even for the 400,000 DLA claimants currently aged between 60 and 64, many of whom will have reached the age of 65 by the time labour’s proposed National Care Service is introduced.

Because, of course, DLA is not just paid to people under 65. You have to make your claim before you are 65, but you can then go on claiming indefinitely if your needs do not change.

Unfortunately, many organisations who should know better seem to have forgotten that – perhaps just as the government hoped.

Because Mr Burnham made no secret about why he made this announcement: he wants to shut people up. He said in his speech, given at a conference in Harrogate on 22nd October and also published on the Big Care Debate website:

“One avenue I do want to close down, however, is the debate and controversy over Disability Living Allowance.”

In that ambition, he seems to have succeeded, at least so far as some disability charities are concerned.

Immediately following Burnham’s speech, Disability Alliance sent out a press release stating that:

” …the Disability Living Allowance (DLA) benefit will not be affected by Government plans to merge some benefits with social care funding…Andy Burnham’s announcement will reassure disabled people that DLA is safe – for now at least.”

The Disability Charities Consortium told the media:

“This represents a real victory for disabled people who felt very strongly that the DLA should be retained and made their collective voice heard on this issue. “

Macmillan Cancer Support also issued a press release saying that:

“Whilst we are pleased the Government has said Disability Living Allowance (DLA) will not be used to meet the shortfall in social care funding, we remain deeply concerned that Attendance Allowance (AA) is still under threat.”

But that isn’t what Andy Burnham said at all. He said DLA for under 65’s is not being considered.

This was echoed by Yvette Cooper, the DWP secretary of state who told a meeting of the All Party Parliamentary Group on ME on 21st October that DLA for people of ‘working age’ is not under review.

It was also made clear by Burnham that there will be no transitional protection of existing awards for current claimants. Instead, ‘an equivalent level of support’ will be provided by your local authority.

Burnham’s announcement seems to have had the desired effect, however – the ‘debate and controversy’ over DLA appears to be over as far as some disability charities are concerned. Yet, in a little over two weeks time the deadline for submissions on the green paper ends.

It’s vital that the case for saving DLA for all claimants is still made. Only now there is a real worry that not only have the disability charities relaxed, but also that Burnham will claim that because 3,000 submissions to the Big Care Debate were made before his announcement that DLA for under 65s is safe, they should mostly be discounted.

If you don’t want the government to get away with closing down ‘the debate and controversy over Disability Living Allowance’ there are things you can do.

Contact disability groups you have a connection with and warn them that they still need to respond to the green paper in relation to both DLA and AA.

Respond to the Care Green paper yourself, again if necessary, making it clear that you are aware that DLA for under 65s is not under consideration and giving your views on axing AA and DLA for people aged 65 and over.

http://careandsupport.direct.gov.uk/greenpaper/execsum/

Email: careandsupport@dh.gsi.gov.uk

Rouse people to sign the No 10 petition, which is gathering real momentum again: it now has over 19,000 signatures and is at number 8 out of over four and a half thousand petitions on the site. Not bad going for a petition that has been running for less than two months.

http://petitions.number10.gov.uk/AttendanceA/

Tell your MP what you think or, better still, go and visit them and tell them face-to-face.

One final thought. The revelation that the government is considering slashing the income of 2.5 million older disabled claimants was made by Andy Burnham in a keynote speech last week.

The subject of that speech?

Outlawing ageism in the NHS.

Good luck,

Steve Donnison

Please feel free to forward or publish this article, which is also available online at: http://www.benefitsandwork.co.uk/news/latest-news/1118-dla-saved–for-some

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

POST YOUR NEWS
Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

Unfortunately, we’re getting so many emails on this subject that we are unlikely to be able to respond individually. But we do appreciate hearing your news and views and we do encourage you to publish them for others to read on the forums detailed above.

—————–

From Steve Donnison  | 30 October 2009

£20,000 shock birthday tax for all

A £20,000 tax bill on your 65th birthday sounds like the stuff of nightmares or political satire. But it’s one of the proposals in the care green paper which has so far received little attention as the government struggles to deal with the outcry over disability benefits cuts.

On the subject of which, people who receive the campaign newsletter will already know that the health secretary has now said DLA for the under-65s will not be used to fund the proposed new care service. But he has offered no such guarantee in relation to either AA or DLA currently paid to people aged 65 and over.

Combine a £20,000 tax bill with your DLA being stopped and 65th birthdays could become the most financially ruinous occasion of many people’s lives. Members can read the full story at:

£20,000 shock birthday tax for all
http://www.benefitsandwork.co.uk/news/members-only-news/1121-p20000-shock-birthday-tax-for-all

Of course, none of this may happen and you still have a chance to have your say about whether it should or not by visiting:

http://careandsupport.direct.gov.uk/greenpaper/execsum/

or emailing: careandsupport@dh.gsi.gov.uk

Employment and support allowance is also proving financially ruinous, not just to claimants being refused it, but possibly also to the private sector companies involved in the mandatory work-focused Pathways interviews.

We look at claims by a multinational company that delays in ESA medicals are leading to lost profits for them and to terminally ill claimants being forced to attend Pathways interviews.

The company also suggests that claimants who make real efforts to move towards employment before their medical may be losing their entitlement to ESA as a result and thus also losing the support that Pathways is supposed to provide.

Finally, in an effort to end on a slightly cheerier note, we have the news that CPAG have put an end to bullying attempts by the DWP to recover money from claimants where they have no legal right to get the money back.

It’s good to know that there’s still a little justice left out there.

Good luck,

Steve Donnison

DLA saved – for some
http://www.benefitsandwork.co.uk/news/latest-news/1118-dla-saved-for-some
Health secretary Andy Burnham has announced that: “I can state categorically that we have now ruled out any suggestion that DLA for under-65s will be brought into the new National Care Service.”

CPAG victory over DWP bullies
http://www.benefitsandwork.co.uk/news/latest-news/1117-cpag-victory-over-dwp-bullies
Children Poverty Action Group (CPAG) have won a court order to stop the DWP threatening legal action against claimants in order to recover money the department has no right to.

Lords warn attack on DLA and AA will be “very strongly resisted”
http://www.benefitsandwork.co.uk/news/latest-news/1116-lords-warn-attack-on-dla-and-aa-will-be-very-strongly-resisted
Disabled benefits claimants have finally found influential allies in their fight to save DLA and AA from being used to pay for the government’s planned national care service. Bizarrely, one of these allies may even be David Freud, now the shadow work and pensions minister.

MEMBERS ONLY
Not yet a member?
Find out how to join Benefits and Work and get instant access to all our downloadable claims and appeals guides, DWP materials, members news items and more.
www.benefitsandwork.co.uk/join-us

Claimants who try lose benefits
http://www.benefitsandwork.co.uk/news/members-only-news/1119-claimants-who-try-lose-benefits
A private sector provider alleges that claimants risk losing their employment and support allowance (ESA) as a result of diligently taking part in the Pathways to Work programme. They also claim that delays in medical assessments are causing ‘confusion and distress to claimants’, with some terminally ill people being forced to attend work-focused interviews, and are hitting the private sector’s profits.

£20,000 shock birthday tax for all
http://www.benefitsandwork.co.uk/news/members-only-news/1121-p20000-shock-birthday-tax-for-all
It’s your 65th birthday. A pile of cards drop through the letterbox. There’s also two brown envelopes…

XMRV Retrovirus: CFSAC meeting Day Two

XMRV   Retrovirus   Whittemore Peterson Institute   Science   Mikovits   Chronic Fatigue Syndrome

XMRV Media Round up 18    WordPress Shortlink: http://wp.me/p5foE-2fR

Click here for all previous XMRV Media Round ups: https://meagenda.wordpress.com/category/xmrv/

 

XMRV Retrovirus: CFSAC meeting Day Two

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services via the Assistant Secretary for Health of the U.S. Department of Health and Human Services on issues related to chronic fatigue syndrome (CFS).

Wanda K. Jones, DrPH is the CFSAC Designated Federal Official Deputy Assistant Secretary for Health – Women’s Health. For more information, visit http://www.hhs.gov/advcomcfs

For those who won’t be attending Day Two of the CFSAC meeting, today, Friday 30th October, the meeting is being videocast. Time displayed on the NIH site is Eastern Time, Washington DC Local. UK is currently 4 hours ahead of Washington DC  – so 9:00 a.m. Washington DC is 13:00 hours UK time.

If you’re not able to catch all of today’s meeting or missed parts of yesterday’s, videocasts of the entire proceedings will be available shortly from the NIH wesbite ( http://videocast.nih.gov/PastEvents.asp ). I will post the links once these are online. 

The CFCAS meeting will begin to stream live from the meeting room a few minutes before 1.00 p.m. UK time, with the audio off.  Microphones are turned on just before the meeting is called to order – so don’t think you haven’t got sound. There are simultaneous subtitles.  Today’s meeting is scheduled to adjourn at 4.00 p.m. Washington time (8.00 p.m. UK time). To watch the full day’s proceedings go to this link and scroll down to:

http://videocast.nih.gov/    RealPlayer required

Chronic Fatigue Syndrome Advisory Committee Meeting (CFSAC) – Day 2

Day 2 Friday 30th October   9:00 a.m. to 4:00 p.m.

 

Agendas for Day One and Day Two are here:   AGENDA

http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html  

Yesterday’s meeting included presentations by Dr Dan Peterson, Dr John Coffin (co-author of the Science “Perspective” article) and Dr David Bell, who spoke on MSpB (FII).

Dr Bell’s PowerPoint Slides can be viewed here:

http://www.hhs.gov/advcomcfs/meetings/agendas/bell_factitious_102909.ppt 

 

YouTube

Clips of Dr Dan Peterson and Annette Whittemore:  http://www.youtube.com/user/Khalyal

7 uploads so far

Also here with some patient testimonies:

http://www.youtube.com/user/luminescentfeeling#p/u/2/80yKflt0tcA

—————-

Whittemore Peterson Website Q & A

http://www.wpinstitute.org/xmrv/xmrv_qa.html

—————-

Kelly reports via Co-Cure  29 October 2009

“An investigative journalism site in Atlanta just posted the following article about the CDC and Reeves.”

Atlanta unfiltered

http://www.atlantaunfiltered.com/2009/10/28/advocates-where-was-cdc-for-milestone-in-chronic-fatigue-syndrome-research/

Advocates: Where was CDC for milestone in chronic fatigue syndrome research?

October 28, 2009 –

Looks like the CDC’s chronic fatigue syndrome research group, led by Dr. William C. Reeves, may have some ‘splaining to do today in Washington. A possible research breakthrough — the discovery of a correlation between CFS and a retrovirus related to the AIDS virus — has fired up the medical community in recent weeks. “This is going to create an avalanche of subsequent studies,” Dr. William Schaffner, an infectious disease expert at Vanderbilt University, told the New York Times this month. But will the Centers for Disease Control and Prevention play a role in that research? It hasn’t so far.

—————-

Patient community websites, blogs, commentaries

Cort Johnson’s Phoenix Rising website

Resources, Blog and Forums

http://aboutmecfs.org/Rsrcs/XMRVResources.aspx

—————-

Hillary Johnson, author of Osler’s Web

http://www.oslersweb.com/blog.htm?post=641747

Inside the Labyrinth
BILL REEVES: THE DECIDER

October 24, 2009

—————-

Peggy Munson

“First, Do No Pharma”

http://peggymunson.blogspot.com/

Peggy Munson
Saturday, October 17, 2009

—————-

CFS Patient Advocate

http://cfspatientadvocate.blogspot.com/2009/10/xmrv.html

—————-

Dr Marc-Alexander reports via Co-Cure 

Source: NCBI PubMed
Date: 27 oktober 2009
URL: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Topic: XMRV
Ref: The list below illustrates that so far, just 16 papers have been published on the XMRV.

XMRV papers published up to october 27, 2009

Hohn O, Krause H, Barbarotto P, Niederstadt L, Beimforde N, Denner J, Miller K, Kurth R, Bannert N.
Lack of evidence for xenotropic murine leukemia virus-related virus (XMRV) in German prostate cancer patients.
Retrovirology. 2009 Oct 16;6(1):92.

Lombardi VC, Ruscetti FW, Das Gupta J, Pfost MA, Hagen KS, Peterson DL, Ruscetti SK, Bagni RK, Petrow-Sadowski C, Gold B, Dean M, Silverman RH, Mikovits JA.
Detection of an Infectious Retrovirus, XMRV, in Blood Cells of Patients with Chronic Fatigue Syndrome.
Science. 2009 Oct 8.

Yan Y, Liu Q, Kozak CA.
Six host range variants of the xenotropic/polytropic gammaretroviruses define determinants for entry in the XPR1 cell surface receptor.
Retrovirology. 2009 Oct 7;6(1):87.

Schlaberg R, Choe DJ, Brown KR, Thaker HM, Singh IR.
XMRV is present in malignant prostatic epithelium and is associated with prostate cancer, especially high-grade tumors.
Natl Acad Sci U S A. 2009 Sep 22;106(38):16351-6.

Stang A, Petrasch-Parwez E, Brandt S, Dermietzel R, Meyer HE, Stuhler K, Liffers ST, Uberla K, Grunwald T.
Unintended spread of a biosafety level 2 recombinant retrovirus.
Retrovirology. 2009 Sep 22;6:86.

Hong S, Klein EA, Das Gupta J, Hanke K, Weight CJ, Nguyen C, Gaughan C, Kim KA, Bannert N, Kirchhoff F, Munch J, Silverman RH.
Fibrils of prostatic acid phosphatase fragments boost infections with XMRV (xenotropic murine leukemia virus related virus), a human retrovirus associated with prostate cancer.
J Virol. 2009 Jul;83(14):6995-7003.

Knouf EC, Metzger MJ, Mitchell PS, Arroyo JD, Chevillet JR, Tewari M,
Multiple integrated copies and high-level production of the human retrovirus XMRV (xenotropic murine leukemia virus-related virus) from 22Rv1 prostate carcinoma cells.
J Virol. 2009 Jul;83(14):7353-6.

Bisbal C, Salehzada T.
RNase L, a crucial mediator of innate immunity and other cell functions [French].
Med Sci (Paris). 2008 Oct;24(10):859-64.

Fischer N,  Hellwinkel O, Schulz C, Chun FK, Huland H, Aepfelbacher M, Schlomm T.
Prevalence of human gammaretrovirus XMRV in sporadic prostate cancer.
J Clin Virol. 2008 Nov;43(3):277-83.

Dong B, Silverman RH, Kandel ES.
A natural human retrovirus efficiently complements vectors based on murine leukemia virus.
PLoS One. 2008 Sep 4;3(9):e3144.

Kim S, Kim N, Dong B, Boren D, Lee SA, Das Gupta J, Gaughan C, Klein EA, Lee C, Silverman RH, Chow SA.
Integration site preference of xenotropic murine leukemia virus- related virus, a new human retrovirus associated with prostate cancer.
J Virol. 2008 Oct;82(20):9964-77.

Summers K, Crespi B.
Molecular evolution of the prostate cancer susceptibility locus RNASEL: evidence for positive selection.
Infect Genet Evol. 2008 May;8(3):297-301.

McCormick AL, Brown RH Jr, Cudkowicz ME, Al-Chalabi A, Garson JA.
Quantification of reverse transcriptase in ALS and elimination of a novel retroviral candidate.
Neurology. 2008 Jan 22;70(4):278-83.

Silverman RH.
A scientific journey through the 2-5A/RNase L system.
Cytokine Growth Factor Rev. 2007 Oct-Dec;18(5-6):381-8.

Dong B, Kim S, Hong S, Das Gupta J, Malathi K, Klein EA, Ganem D, Derisi JL, Chow SA, Silverman RH.
An infectious retrovirus susceptible to an IFN antiviral pathway from human prostate tumors.
 Natl Acad Sci U S A. 2007 Jan 30;104(5):1655-60.

Urisman A,  Molinaro RJ, Fischer N, Plummer SJ, Casey G, Klein EA, Malathi K, Magi-Galluzzi C, Tubbs RR, Ganem D, Silverman RH, DeRisi JL.
Identification of a novel Gammaretrovirus in prostate tumors of patients homozygous for R462Q RNASEL variant.
PLoS Pathog. 2006 Mar;2(3):e25. Epub 2006 Mar 31.

(c) 2009 NCBI PubMed

—————-

The Definition Petition

Petition webpage: http://CFSdefinitionpetition.notlong.com
i.e. http://www.ipetitions.com/petition/empirical_defn_and_CFS_research

If you haven’t already signed it – sign the CFS Definition Petition today at: http://CFSdefinitionpetition.notlong.com

Future of DLA: Health Secretary Andy Burnham speech, Benefits and Work updates

Update: New update from Benefits and Work added since this post was published see: DLA saved – for some” at end of post.

DLA: Health Secretary Andy Burnham speech, Benefits and Work updates

WordPress Shortlink: http://wp.me/p5foE-2et

Guardian  |  Rachel Williams  |  Thursday 22 October 2009

http://www.guardian.co.uk/society/2009/oct/22/social-care-nhs-disability-allowance

Health secretary Andy Burnham: ‘Nobody receiving disability benefits will lose out’.

The health secretary, Andy Burnham, will today rule out a controversial plan to scrap disability benefit paid to 2.5 million younger people.

In a major speech on the future of social care, he will say he has decided not to use disability living allowance (DLA) to fund the new national care service.

But the abandonment of the idea, which would have saved £6bn, raises further questions about how the government will meet the spiralling bill for social care. Last night the Tories claimed there was a £4.6bn “black hole” in Labour’s flagship health plans… Read full article here

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Benefits and Work  www.benefitsandwork.co.uk

From Steve Donnison  |  22 October 2009

A champion emerges as minister admits DLA threat

The last two weeks have finally removed any uncertainty about whether DLA is under threat, but they have also brought real cause for optimism.

Lord McKenzie of Luton, the parliamentary under secretary of state for work and pensions, was asked last week in a House of Lords debate which disability benefits the government are ‘considering integrating into the wider social care budget in England’.

Lord McKenzie replied:

“At this stage, we do not want to rule out any options and so are considering all disability benefits.”

Even when care minister Phil Hope’s claim that DLA is ‘not under threat’ was referred to and Lord McKenzie was specifically asked to rule out the using DLA as a source of funding for social care, his response was “no particular benefit is ruled out of consideration.”

So, whilst we can’t say why Phil Hope made his ‘be very happy’ statement, we can now say with certainty that it does not reflect the government’s stated policy. For more, see:

Senior minister confirms DLA is under threat

http://www.benefitsandwork.co.uk/news/latest-news/1115-senior-minister-confirms-dla-is-under-threat

But that same Lord’s debate also brought a real ray of hope in the form of a champion prepared to fight for DLA and AA.

Lord Ashley of Stoke warned the minister that “any attempt by the Government to withdraw these benefits, or any benefits at all, will be very strongly resisted by disabled people, by their organisations and by many Members of both Houses of Parliament.”

Lords warn attack on DLA and AA will be “very strongly resisted”

http://www.benefitsandwork.co.uk/news/latest-news/1116-lords-warn-attack-on-dla-and-aa-will-be-very-strongly-resisted

Lord Ashley – former MP Jack Ashley – is a formidable campaigner, with victories dating right back to the thalidomide campaign of the 1970s. It will not have brought any joy to ministers’ hearts to see Jack Ashley, and a number of other noble Lords, lining up against them. And it’s a tribute to the efforts of Benefits and Work campaigners that this issue has gone from being almost entirely unacknowledged – or dismissed as scaremongering – to being debated in the House of Lords in less than three months.

Elsewhere, the No 10 petition has perked up again, now reaching over 17,000 signatures. As few as another 1,000 signatures should see it getting into the top 10 petitions before the care consultation ends on November 13th. Do you know people who haven’t signed yet? Try and encourage them along to:

http://petitions.number10.gov.uk/AttendanceA/

Meanwhile, the Big Care debate website continues to be swamped by people protesting about the threat to disability benefits. From a feeble 130 posts when we began this campaign, there are now 2,219 responses on the Executive Summary page and 606 on Having Your Say. The total is far higher than that achieved by any similar government consultation and the responses are overwhelmingly hostile.

If you haven’t yet sent a response, please do so by visiting this link:

http://careandsupport.direct.gov.uk/greenpaper/execsum/

Or emailing: careandsupport@dh.gsi.gov.uk

We’d like to close this newsletter with an email from one of our campaigners which we think is an inspiring example of spontaneous campaigning:

“Today I was in the Blackburn Shopping Centre on my Shopmobility scooter when I saw Mr. Jack Straw doing his shopping. It was too good an opportunity not to speak with him, so after a few swift manoeuvres I asked for one minute of his time. I told him that I had worked for the past 32 years in the NHS and had now been diagnosed with RA [rheumatoid arthritis] hence the scooter and that I have just been awarded DLA and what a difference it has and will make to myself and indeed others and to please not take it away…. He said “he wouldn’t” and gave me his card to write to him and of course I will follow it up with a letter.”

We’re not suggesting that gangs of claimants on Shopmobility scooters should roam our town centres hunting for MPs spending their expenses – pleasing though that image is – but if you’re able to, why not make an appointment to see your MP at their regular surgery and put your views across in person?

With an election looming, the fact that people are prepared to actually visit them in their offices will make a real impression, particularly on MPs with slender majorities.

Good luck,

Steve Donnison

Please feel free to forward or publish this email.

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

POST YOUR NEWS

Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

Unfortunately, we’re getting so many emails on this subject that we are unlikely to be able to respond individually. But we do appreciate hearing your news and views and we do encourage you to publish them for others to read on the forums detailed above.

—————–

Benefits and Work  www.benefitsandwork.co.uk

From Steve Donnison  |  14 October 2009

Your chances of getting ESA – the secret’s out

14.10.09

Dear Subscriber,

We finally have statistics which tell us what proportion of claimants get an award of ESA and what proportion who don’t get an award subsequently win on appeal. We also know how many people are getting into the support group.

Overall, the figures are not good – but they’re also not as bad as many in the media and the welfare to work industry had been claiming. They aren’t even as bad as the DWP is now trying to make them out to be, as they crow about “stopping more people getting trapped on long-term sickness benefit”.

Read more about the real figures – the ones not mentioned in the dwp press release – in our members area article.

On the subject of bad figures, how would you feel about a £35,000 tax bill? That’s what one disabled claimant has been landed with after changing the employment status of her personal carers. We asked our resident barrister Holiday Whitehead what, if anything, this claimant did wrong.

Her response got us thinking that if you employ personal carers you may well have all sorts of employment issues you’d like an answer to. So, why not drop us an email at info@benefitsandwork.co.uk and we’ll publish (anonymously) a selection of your queries along with Holiday’s answers.

And, just to lighten the mood a little, we have some very happy emails from people who – with a bit of help from Benefits and Work – have won awards of benefits for themselves, their children or other family members.

Finally, a gentle reminder: if you haven’t signed the DLA/AA petition on the number 10 website please do pop along and do so at:

http://petitions.number10.gov.uk/AttendanceA/

There are over 15,000 signatures on it now, but more are still needed if it’s to strike fear into the hearts of vote hungry MPs. For those of you who also subscribe to the No More Benefits Cuts newsletter, there’ll be another one out next Tuesday.

Good luck,

Steve Donnison

£35,000 tax bill – could it happen to you?

http://www.benefitsandwork.co.uk/news/latest-news/1112-p35000-tax-bill-for-disabled-claimant

Last month a disabled grandmother received a tax bill for £35,000 for unpaid employers’ tax and national insurance in respect of her full-time carers.

I haven’t stopped grinning since

http://www.benefitsandwork.co.uk/news/latest-news/1113-i-havent-stopped-grinning-since

Awards of DLA for themselves and for relatives, successful appeals . . . more good news from our members.

MEMBERS ONLY

Not yet a member?
Find out how to join Benefits and Work and get instant access to all our downloadable claims and appeals guides, DWP materials, members news items and more.

www.benefitsandwork.co.uk/join-us

Your chances of getting ESA – the secret’s out
http://www.benefitsandwork.co.uk/news/members-only-news/1111-your-chances-of-getting-esa–the-secrets-out

The DWP have released statistics showing how many people have successfully claimed ESA. However, the figures may not be as bad as the DWP are trying to make them appear.

(c) 2009 Steve Donnison. All rights reserved.

—————–

Benefits and Work  www.benefitsandwork.co.uk

From Steve Donnison  |  27 October 2009

DLA saved – for some

It’s a start, but nowhere near enough.

Health secretary Andy Burnham has said that he has ‘heard the concerns and worries about disability living allowance’. As a result, he has announced that:

“I can state categorically that we have now ruled out any suggestion that DLA for under-65s will be brought into the new National Care Service.”

Good news indeed . . . for some . . . for the moment.

But definitely not for the one and a half million people who depend on AA.

Nor for the for the three quarters of a million people aged 65 and over who receive DLA.

Not even for the 400,000 DLA claimants currently aged between 60 and 64, many of whom will have reached the age of 65 by the time labour’s proposed National Care Service is introduced.

Because, of course, DLA is not just paid to people under 65. You have to make your claim before you are 65, but you can then go on claiming indefinitely if your needs do not change.

Unfortunately, many organisations who should know better seem to have forgotten that – perhaps just as the government hoped.

Because Mr Burnham made no secret about why he made this announcement: he wants to shut people up. He said in his speech, given at a conference in Harrogate on 22nd October and also published on the Big Care Debate website:

“One avenue I do want to close down, however, is the debate and controversy over Disability Living Allowance.”

In that ambition, he seems to have succeeded, at least so far as some disability charities are concerned.

Immediately following Burnham’s speech, Disability Alliance sent out a press release stating that:

“. . . the Disability Living Allowance (DLA) benefit will not be affected by Government plans to merge some benefits with social care funding . . . Andy Burnham’s announcement will reassure disabled people that DLA is safe – for now at least.”

The Disability Charities Consortium told the media:

“This represents a real victory for disabled people who felt very strongly that the DLA should be retained and made their collective voice heard on this issue. “

Macmillan Cancer Support also issued a press release saying that:

“Whilst we are pleased the Government has said Disability Living Allowance (DLA) will not be used to meet the shortfall in social care funding, we remain deeply concerned that Attendance Allowance (AA) is still under threat.”

But that isn’t what Andy Burnham said at all. He said DLA for under 65’s is not being considered.

This was echoed by Yvette Cooper, the DWP secretary of state who told a meeting of the All Party Parliamentary Group on ME on 21st October that DLA for people of ‘working age’ is not under review.

It was also made clear by Burnham that there will be no transitional protection of existing awards for current claimants. Instead, ‘an equivalent level of support’ will be provided by your local authority.

Burnham’s announcement seems to have had the desired effect, however – the ‘debate and controversy’ over DLA appears to be over as far as some disability charities are concerned. Yet, in a little over two weeks time the deadline for submissions on the green paper ends.

It’s vital that the case for saving DLA for all claimants is still made. Only now there is a real worry that not only have the disability charities relaxed, but also that Burnham will claim that because 3,000 submissions to the Big Care Debate were made before his announcement that DLA for under 65s is safe, they should mostly be discounted.

If you don’t want the government to get away with closing down ‘the debate and controversy over Disability Living Allowance’ there are things you can do.

Contact disability groups you have a connection with and warn them that they still need to respond to the green paper in relation to both DLA and AA.

Respond to the Care Green paper yourself, again if necessary, making it clear that you are aware that DLA for under 65s is not under consideration and giving your views on axing AA and DLA for people aged 65 and over.

http://careandsupport.direct.gov.uk/greenpaper/execsum/

Email: careandsupport@dh.gsi.gov.uk

Rouse people to sign the No 10 petition, which is gathering real momentum again: it now has over 19,000 signatures and is at number 8 out of over four and a half thousand petitions on the site. Not bad going for a petition that has been running for less than two months.

http://petitions.number10.gov.uk/AttendanceA/

Tell your MP what you think or, better still, go and visit them and tell them face-to-face.

One final thought. The revelation that the government is considering slashing the income of 2.5 million older disabled claimants was made by Andy Burnham in a keynote speech last week.

The subject of that speech?

Outlawing ageism in the NHS.

Good luck,

Steve Donnison

Please feel free to forward or publish this article, which is also available online at: http://www.benefitsandwork.co.uk/news/latest-news/1118-dla-saved–for-some

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

POST YOUR NEWS
Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

(c) 2009 Steve Donnison. All rights reserved.

Benefits and Work: Charities claim it’s too late to save DLA and AA

An update from Steve Donnison of Benefits and Work

Charities claim it’s too late to save DLA and AA

6 October 2009

CHARITIES ADMIT DEFEAT

We have received a copy of an email which a campaigner says came from the charity ASBAH (Association for Spina Bifida and Hydrocephalus) in response to his concerns about the care green paper. The email appears to admit defeat in the fight to save DLA and AA:

“…ASBAH, in line with many other larger bodies is of the view that these proposals have already gathered too much momentum to be reversed and that major changes are inevitable… it is vital within any alternative system that people retain elements within their budgets where they can exercise choice in how they spend that money. Although we have not adopted a position where we are fighting to save DLA and AA we would fight to see this element of choice protected and would resist any attempt to convert all support to ‘in kind’.”

We have emailed ASBAH to ask for confirmation that the email is genuine and to ask which other ‘larger bodies’ – presumably disability charities – have also given up the fight to save DLA and AA.

We have yet to receive a response.

MINISTER’ STATEMENT: IS DLA REALLY SAVED?

One week on and there has been absolutely no corroboration of Care Services minister Phil Hope’s off-the-cuff statement that DLA is not being considered for the axe.

As we pointed out last week, Hope’s ‘don’t worry, be happy’ exhortation contradicts previous statements made by the DWP. So, the continued failure by either the DWP or the Department of Health to make any official statement confirming that they have changed their position and that DLA is now safe can only be a cause for deep suspicion and grave concern.

In addition, no reassuring words whatsoever have been offered in relation to AA.

So, at Benefits and Work, our message continues to be ‘It’s not over yet: carry on campaigning’.

NO 10 PETITION STRUGGLING

The petition about DLA and AA seems to be grinding to a halt again, at under 12,000 signatures. As we said last week, if any agency starts a petition it’s vital that they give it maximum publicity or it ends up damaging, rather than promoting, their cause.

Do you have time to check the website of any disability charity that you have a connection with and, if there isn’t an obvious link to the No 10 petition, email them and politely ask them to publish one.

You could point out that the petition was started by the Disability Charities Consortium and that it’s important that disability charities now work together effectively to promote it. If they can’t act together on so simple a thing as getting signatures on a petition, then what exactly can they act together on and how can they claim to be representing their members’ interests?

The petition can be found at:

http://petitions.number10.gov.uk/AttendanceA/

GREEN PAPER WEBSITE AMAZED

The Big Care Debate website have answered our queries about missing responses by replying that “we have received an amazing response from the public in regards to the Green Paper, on both the website and via email. We are doing our best to work our way through them, and have them online and ready to view as soon as we can.”

We know that in the past, such consultations have struggled to get responses numbering in the hundreds, let alone the thousands. So, we can certainly believe that the ‘amazing’ response by Benefits and Work campaigners has taken the Department of Health by surprise. But we do wonder how hard it can be to read and publish a few thousand posts over several months. Is the sheer volume of communications really the only problem? Rather than, say, the fact that most responses are overwhelmingly hostile to the green paper?

If you haven’t yet sent a response to the green paper, please do so by visiting this link:

http://careandsupport.direct.gov.uk/greenpaper/execsum/

Or emailing: careandsupport@dh.gsi.gov.uk

We’re concerned that there doesn’t appear to be any complaints procedure for the green paper consultation and we’re looking into this. But at the very least, if they don’t publish your response it will give more grounds for challenging the validity of the whole green paper consultation, which is after all a statutory process.

POST YOUR NEWS

Finally, remember that you can post your news in the Benefits and Work forum, if you’re a member, at:

http://www.benefitsandwork.co.uk/forum?func=showcat&catid=13

and/or in the free welfare watch forums at:

http://welfarewatch.myfineforum.org/index.php

You can also keep up with news about opposition to the green paper at the Carer Watch campaign blog:

http://carerwatch.com/cuts/

Unfortunately, we’re getting so many emails on this subject that we are unlikely to be able to respond individually. But we do appreciate hearing your news and views and we do encourage you to publish them for others to read on the forums detailed above.

Good luck,

Please feel free to forward or publish this email.

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

(c) 2009 Steve Donnison. All rights reserved.

Benefits and Work campaign: DLA is not under threat says minister

Benefits and Work 100 Days campaign

An update from Benefits and Work from Steve Donnison

“DLA is not under threat . . . be very happy” says minister

Steve Donnison  |  29 September 2008

In what may represent a dramatic victory for campaigners, Care Services Minister Phil Hope yesterday told a reporter at the Labour Party conference that DLA is not under threat by the care green paper.

According to the Disability Now website, Phil Hope, when asked if he would abolish DLA after the election, replied:

“No. All the models that we have done have not included DLA. But if people were to make a case to integrate DLA into a comprehensive system, then I’m very happy to hear that case and have those arguments.

“DLA is not under threat and people can be very happy”.

For more details and our reaction, visit here

We know that some people will claim that the minister’s comments are evidence that campaigning to save DLA was unnecessary. It’s a claim, however, that can only be be made by ignoring such as the following.

1 Earlier this month the DWP press office said in relation to whether DLA would be scrapped: “It depends on what people say in the consultation. We need to see what people say when they respond.”

2 The same minister who is now saying DLA is not under threat wrote to MEP Liz Lynne just a fortnight ago stating that: “…this is a consultation exercise and no final decisions have been made about which disability benefits might be involved, or how they would be affected.”

3 The same minister also refused to rule out the possibility of DLA being axed in an interview earlier this month with Disability Now.

4 Last month CPAG claimed that it had received assurances from ‘senior sources’ at the DWP that DLA was not under threat. Just four days later CPAG revealed that it had “subsequently been contacted by the DWP who have said that no decisions have been taken as to the future of DLA whilst the consultation is ongoing.” CPAG then went off to lobby the Department of Health on the issue.

5 For almost two months national charities such as the MS Society have tried, but failed, to get clarification from the government as to whether DLA would be affected by the care green paper.

6 Just last week, David Behan, the Director General of Social Care at the Department of Health, published a blog post on the Big Care Debate website clearly trying to reduce the flood of hostile responses. He could have easily done so by saying outright that DLA would not be affected by the green paper – he didn’t.

The reality is that, if the government have now stepped back from an attack on DLA before the care consultation has even ended, it is because of the literally thousands of angry responses on the Big Care Debate website, the thousands of signatures on petitions, the torrent of angry letters to MPs, the motions before the Scottish and Welsh assemblies and the growing pressure from disability charities who were themselves under enormous pressure from outraged claimants.

It’s because the focus on the single issue of benefits is fast becoming a public relations disaster for a green paper signed by no fewer than six secretaries of state.

Above all, if there’s been a change of heart, it’s because you have fought so effectively to protect the benefits of disabled people.

Here at Benefits and Work we don’t know if the fight is yet over for DLA, but we do know for certain it’s only just begun for AA.

Good luck,

Steve Donnison

LATEST DLA AND AA THREAT ARTICLES

CPAG admits DLA is not safe
www.benefitsandwork.co.uk/news/latest-news/1104-cpag-admits-dla-is-not-safe

DLA threat website tries to stem hostile responses
www.benefitsandwork.co.uk/news/latest-news/1105-dla-threat-website-tries-to-stem-hostile-responses

Scrapping DLA is an option confirms DWP
www.benefitsandwork.co.uk/news/latest-news/1106-scrapping-dla-is-an-option-confirms-dwp

Is the Big Care Debate being nobbled?
www.benefitsandwork.co.uk/news/latest-news/1107-is-the-big-care-debate-being-nobbled

Scottish and Welsh assemblies campaign for DLA and AA
www.benefitsandwork.co.uk/news/latest-news/1108-scottish-and-welsh-assemblies-campaign-for-dla-and-aa

No 10 DLA and AA petition needs you
www.benefitsandwork.co.uk/news/latest-news/1109-no-10-dla-and-aa-petition-needs-you

“DLA is not under threat . . . be very happy” says government minister
www.benefitsandwork.co.uk/news/latest-news/1110-dla-is-not-under-threat—-be-very-happy-says-government-minister

Please feel free to forward or publish this email.

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk  

Company registration No. 5962666

(c) 2009 Steve Donnison. All rights reserved.

Benefits and Work Campaign: Save DLA and AA: have you signed the No 10 petition yet?

Benefits and Work Campaign: Save DLA and AA: have you signed the No 10 petition yet?

September update from Steve Donnison. Check back for newsletter next Tuesday…

Steve Donnison | 25 September 2008

We’re back from annual leave now and have been catching up on what’s been happening in our absence.

We’ll be sending out a detailed newsletter on Tuesday which will include evidence from several reputable sources that DLA is definitely under threat, plus voicing your concerns about what exactly is going on with the Big Care Debate website, where your responses are often not being published even when the website is working.

Meanwhile, however, we would strongly urge campaigners to sign the DLA and AA petition on the No 10 website, posted on 7 September by Peter Hand of Mencap.

The petition is at:

http://petitions.number10.gov.uk/AttendanceA/

So far it’s collected 3,728 signatures and is the 33rd largest petition on the site, which is not bad, but far short of what’s needed.

We know lots of people are very sceptical about petitions on No 10 – they feel they achieve very little other than dismissive responses from civil servants. Some also don’t like the fact that you’re asked to give an email address and your home address.

However, the petition is up and running and, unless it gathers lots of support, it could be used as evidence that there’s actually little concern about the future of DLA and AA.

Bear in mind that signing up to the Benefits and Work campaign is not like signing a petition – we aren’t going to be passing on your details to anyone else. So the fact that almost 26,000 people have now signed up to the campaign can be ignored by politicians.

But politicians know that virtually every signature on a No. 10 petition belongs to a voter and, with an election less than a year away, every signature really could make a difference.

So, please do sign the petition and spread word of it around forums and to people on your email list.

Good luck,

Steve Donnison

Please feel free to forward or publish this email.

Benefits and Work Publishing Ltd
www.benefitsandwork.co.uk
Company registration No. 5962666

(c) 2009 Steve Donnison. All rights reserved.