Category: Chronic fatigue syndrome

ME agenda: update on status of this site

ME agenda: update on status of this site

This site was created in June 2007 for ME patients, carers and advocates and provided information, resources and commentary on the political issues affecting the lives of UK Myalgic encephalomyelitis (ME) patients.

In 2009, my primary advocacy focus shifted towards monitoring the development of DSM-5* (published May 2013) and ICD-11 (endorsed by the World Health Assembly in May 2019).

In 2010, I created Dx Revision Watch (originally called DSM-5 and ICD-11 Watch) specifically for monitoring the development of both classification systems.

ME agenda site will remain online for its post archives (Post Index to approximately 980 posts) and for occasional, important information relating specifically to ICD-11, DSM-5 and ICD-10-CM.

I have a number of other sites: status: extension site for Dx Revision Watch for occasional, selected material.

Twenty-six soldiers of lead status: extension site to ME agenda for occasional, selected material.

Read ME UK Events status: archived.

Read ME UK Events was created in March 2008 in response to the considerable concerns surrounding the April 2008 Royal Society of Medicine conference on “Chronic Fatigue Syndrome” and to promote the various protests that were staged.

Suzy Chapman can be contacted via the Dx Revision Watch Contact page

Follow Dx Revision Watch on Twitter @dxrevisionwatch

*DSM; DSM-IV; DSM-IV-TR; DSM-IV-PC; DSM-V; DSM V; DSM-5; DSM 5 are registered trademarks of the American Psychiatric Association

Next Meeting of the ICD-9-CM Coordination and Maintenance Committee

Next Meeting of the ICD-9-CM Coordination and Maintenance Committee

The next meeting of the ICD-9-CM Coordination and Maintenance Committee is announced for September 19, 2012 and a tentative agenda issued. The Committee is co-chaired by CMS and CDC.

ICD-10-CM is a US specific modification of the WHO’s ICD-10 and not yet implemented. (When ICD-10-CM has been implemented, the Committee will be known as the ICD-10-CM Coordination and Maintenance Committee.)

The current proposal for the compliance date for some entities for adoption of ICD-10-CM is that the deadline be delayed for a further year, from October 1, 2013 to October 1, 2014, to allow more time for US clinical practices and the healthcare industry to prepare for transition from ICD-9-CM to ICD-10-CM. The public comment period on this proposal closed in June and a final rule for compliance has yet to be announced.

Coding of Chronic fatigue syndrome within the forthcoming ICD-10-CM

Discussion of the location of Chronic fatigue syndrome in ICD-10-CM is tabled on the tentative agenda for the September 19 meeting.

At the September 14, 2011 meeting of the ICD-9-CM Coordination and Maintenance Committee, a presentation was made on behalf of the Coalition 4 ME/CFS.

A proposal had been submitted by the Coalition that consideration be given to moving the classification of Chronic fatigue syndrome from the R code chapter (Symptoms and signs) of ICD-10-CM to the G code chapter (Diseases of the nervous system).

This would bring the chapter location and parent class coding of Chronic fatigue syndrome in line with ICD-10 and the Canadian ICD-10-CA.

Proposals for the forthcoming ICD-11 have Chronic fatigue syndrome, Postviral fatigue syndrome and ME classified under the G codes, within Chapter 6 Diseases of the nervous system, with Chronic fatigue syndrome designated as an ICD-11 Title term and ME specified as an Inclusion term to Chronic fatigue syndrome.

Various suggestions were discussed at the meeting as to how the three terms should be coded if Chronic fatigue syndrome were moved to the G codes chapter. No decision has been conveyed following closure of the public comment period for the meeting.

Further discussion of the location of Chronic fatigue syndrome in ICD-10-CM has been tabled on the tentative agenda for the September 19, 2012 meeting. I will post Summary documents and other relevant meeting materials as these become available.

There are three posts on Dx Revision Watch that relate to the Coalition’s presentation at the September 14, 2011 meeting:

Coding CFS in ICD-10-CM: CFSAC and the Coalition4ME/CFS initiative

Extracts: ICD-9-CM Coordination and Maintenance Committee Meeting Summary document (CFS coding)

Extracts: ICD-9-CM Coordination and Maintenance Committee Meeting September 14, 2011 (Coding of CFS in ICD-10-CM)

For further information on this public process see the CDC website page:

ICD-9-CM Coordination and Maintenance Committee

Upcoming meeting: September 19, 2012

Tentative Agenda

A Notice by the Centers for Disease Control and Prevention

Notice of Meeting of the ICD-9-CM Coordination and Maintenance Committee

The National Center for Health Statistics (NCHS), Classifications and Public Health Data Standards Staff announces the following meeting:

Name: ICD-9-CM Coordination and Maintenance (C&M) Committee meeting.

Time and Date: 9 a.m.-5 p.m., September 19, 2012.

Place: Centers for Medicare and Medicaid Services (CMS) Auditorium, 7500 Security Boulevard, Baltimore, Maryland 21244.

Status: Open to the public, limited only by the space available. The meeting room accommodates approximately 240 people.

Security Considerations: Due to increased security requirements CMS has instituted stringent procedures for entrance into the building by non-government employees. Attendees will need to present valid government-issued picture identification, and sign-in at the security desk upon entering the building. Attendees who wish to attend a specific ICD-9-CM C&M meeting on September 19, 2012, must submit their name and organization by September 10, 2012, for inclusion on the visitor list. This visitor list will be maintained at the front desk of the CMS building and used by the guards to admit visitors to the meeting.

Participants who attended previous ICD-9-CM C&M meetings will no longer be automatically added to the visitor list. You must request inclusion of your name prior to each meeting you attend.

Please register to attend the meeting on-line at: citation box

Please contact Mady Hue (410-786-4510 or ), for questions about the registration process.

Matters To Be Discussed: Tentative agenda items include: September 19, 2012.

ICD-10 Topics:
ICD-10 Implementation Announcements
Expansion of Thoracic Aorta Body Part Under Heart and Great Vessels System
Addendum Issues (Temporary Therapeutic Endovascular Occlusion of Vessel, changing body part from thoracic aorta to abdominal aorta)
ICD-10HAC Translations
ICD-10MCE Translations

ICD-10-CM Diagnosis Topics:
Age related macular degeneration
Bilateral mononeuropathy
Bilateral option for cerebrovascular codes
Chronic Fatigue Syndrome
Complications of urinary devices
Diabetic macular edema
Food Protein Induced Enterocolitis Syndrome (FPIES)
Maternal care for previous Cesarean section/previous uterine incision
Metatarsus varus (congenital metatarsus adductus)
Microscopic colitis
Mid-cervical region and coding of spinal cord injuries
Multifocal motor neuropathy
Parity to supervision of pregnancy codes
Proliferative diabetic retinopathy
Retinal vascular occlusions
Salter Harris fractures
Shin splints
Spontaneous rupture/disruption of tendon

Agenda items are subject to change as priorities dictate.


CMS and NCHS will no longer provide paper copies of handouts for the meeting. Electronic copies of all meeting materials will be posted on the CMS and NCHS Web sites prior to the meeting at and

Contact Persons for Additional Information: Donna Pickett, Medical Systems Administrator, Classifications and Public Health Data Standards Staff, NCHS, 3311 Toledo Road, Room 2337, Hyattsville, Maryland 20782, email :, telephone 301-458-4434 (diagnosis); Mady Hue, Health Insurance Specialist, Division of Acute Care, CMS, 7500 Security Boulevard, Baltimore, Maryland 21244, email , telephone 410-786-4510 (procedures).

The Director, Management Analysis and Services Office, has been delegated the authority to sign Federal Register notices pertaining to announcements of meetings and other committee management activities, for both the Centers for Disease Control and Prevention, and the Agency for Toxic Substances and Disease Registry.

Dated: August 9, 2012.

Catherine Ramadei,

Acting Director, Management Analysis and Services Office, Centers for Disease Control and Prevention.

[FR Doc. 2012-20019 Filed 8-14-12; 8:45 am]


(c) 2012 US Federal Register