MRC Two day Research Workshop 19 and 20 November 2009
May be reposted
Research into CFS and ME has been designated a UK Medical Research Council “high priority” area. The MRC convened a Research Advisory Group in 2003 and did a lot of talking. Six years down the line, with a Bill Reeves (CDC) chaired joint MRC/Action for M.E. Research Summit, a new multidisciplinary panel and a lot more talk, we are still waiting for the MRC to put its money where its mouth is. The new MRC Expert Group on CFS/ME Research meets in November for a two day research workshop. For how many more years is the MRC going to be talking about its objective to encourage and conduct high-quality research into CFS and ME?
The MRC CFS/ME Expert Group, chaired by Professor Stephen Holgate, has scheduled a two day research workshop for 19 and 20 November.
Since no details of this Research Workshop have been published by the MRC or by Action for M.E. or the ME Association (who attend meetings of the group), I have, today, submitted a request to the MRC for information under the Freedom of Information Act.
I have requested:
A copy of the Agenda for the two day research workshop scheduled for 19 and 20 November.
A copy of the list of participants for the research workshop.
Clarification of whether the MRC CFS/ME Expert Group intends to continue to hold meetings beyond the two day research workshop.
The MRC are obliged to provide a response within 20 working days. I anticipate a response on or before Friday, 13 November and will update you then.
For Minutes of the December meeting of the MRC CFS/ME Expert Group see previous posting:
The list of members and the Panel’s Terms of Reference were previously obtained by me under FOIA and published here on ME agenda.
The Agenda and Minutes of the meeting on 15 December can be downloaded here or opened in PDF format here:
CFS/ME Expert Group meeting – 15 December 2008
Issued: 15 Dec 2008
Primary audience: Researchers
Agenda and minutes from the 1st meeting held on 15 December 2008
The list of members can be opened in PDF format here:
Term of Reference can be opened in PDF format here:
or go to MRC site for full article and files: