Dr Derek Enlander has written to the Editor, Daily Telegraph
Letter to Editor
21 Mar 2008
Your article this week on Gene research in Myalgic Encephalomyelitis by Dr Jonathan Kerr in St George’s Hospital was a breath of fresh air in the stale atmosphere of UK government funded research. Myalgic Encephalomyelitis and Chronic Fatigue syndrome are commonly referred to as M.E. and C.F.S.
In 1955 Dr Melvin Ramsay reviewed a cohort of young doctors and nurses in the Royal Free Hospital in London and published a report relating to their massive debilitating fatigue. Over the years it has been shown to be a physical disease.
The cause is obscure, this obscurity has been masterfully used by psychiatrists to claim that the disease is a manifestation of a psychiatric condition, leading to an imagined problem. What arrogance !
The esteemed Royal Society of Medicine (RSM) plays to this theme by running a conference next month on ME / CFS. The speakers are dwelling mainly on psychiatry, rather peculiar for a Society of Medicine.
Most of the estimated 190,000 patients in the UK who suffer from this disease are appalled. A large number of them have applied for a demonstration permit outside the RSM to bring this wrongful thrust to the nation’s and RSM’s attention.
The following week, May 6th, a conference in ME / CFS will take place at Cambridge University where the latest methods of diagnosis and treatment will be defined. Dr Kerr will speak on the Genome in ME / CFS.
Dr Klimas, a noted researcher and clinician in Miami Florida, will speak on new developments and diagnostic methods and I will speak on the methods of treatment both in the UK and the USA.
As far as I know the RSM has not noted these physical aspects and has not altered its agenda in the April conference.
The government through NICE continues to waste money on proven bad methods of treatment, based on forced exercise therapy which, in a large number of cases, cause relapse.
Research on the physical basis of the disease has to be funded by private foundations, CFS Research Foundation, ME Research UK and patient money.
Surely, by now, the Government should be embarrassed.
Derek Enlander MD, M.R.C.S., L.R.C.P.
Royal Society of Medicine | Monday 28th April 2008
Wimpole Street and Henrietta Street | 1pm to 6pm
Enquiries to organiser Gus Ryan email@example.com